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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @KFS_Freedom
    RT @RareAdvocates: Thanks for the RTs on travel stipends for #rareDC2018! @KFS_Freedom @lbdeck @jcahillYCF @MarcYale @SanfordCoRDS @liveara…

  • @SanfordCoRDS
    RT @johnnyjots: @StanfordMed @NeurologyNow @SanfordCoRDS @2DDPodcast https://t.co/eR1wpeccGL

  • @johnnyjots
    @StanfordMed @NeurologyNow @SanfordCoRDS @2DDPodcast https://t.co/eR1wpeccGL

  • @RareAdvocates
    Thanks for the RTs on travel stipends for #rareDC2018! @KFS_Freedom @lbdeck @jcahillYCF @MarcYale @SanfordCoRDS @liveararelife

  • @MD_Briggs
    @KFS_Freedom @GlobalGenes @SanfordResearch @SanfordCoRDS @PennMedicine @shrinershosp @ChopLabs @HopkinsMedicine… https://t.co/IWhYXrkQmZ

  • @MD_Briggs
    RT @KFS_Freedom: KFS Patient Registry > https://t.co/urgvqI1oXc Key 2 improved care 4 Klippel-Feil Research Genetics International Rare Di…

  • @Rose_of_Sharon8
    RT @KFS_Freedom: KFS Patient Registry > https://t.co/urgvqI1oXc Key 2 improved care 4 Klippel-Feil Research Genetics International Rare Di…

  • @nan430
    RT @KFS_Freedom: KFS Patient Registry > https://t.co/urgvqI1oXc Key 2 improved care 4 Klippel-Feil Research Genetics International Rare Di…

  • @Sanford_Palfy
    The @SanfordHealth award gives $1 million to scientists who "get things done," according to @DrDavidPearce https://t.co/3QGB4zGLJ5

  • @runnerJPK
    The @SanfordHealth award gives $1 million to scientists who "get things done," according to @DrDavidPearce https://t.co/88fo5bGADs

  • @KFS_Freedom
    KFS Patient Registry > https://t.co/urgvqI1oXc Key 2 improved care 4 Klippel-Feil Research Genetics International… https://t.co/S13ZFoBqSR

  • @SanfordCoRDS
    RT @argusleader: “We’re so close to solving some big problems and maybe our elbow is what is needed to shove them over the edge." https://t…

  • @DrDavidPearce
    RT @argusleader: “We’re so close to solving some big problems and maybe our elbow is what is needed to shove them over the edge." https://t…

  • @SanfordCoRDS
    RT @CheckRare: Challenges of Diagnosing Rare Diseases @OvidRx @CheckOrphan https://t.co/HBS18N7ez3

  • @SanfordCoRDS
    RT @PROS_Foundation: Taking care of yourself is one of the most important things you can do as a #caregiver. #NFCMonth https://t.co/SYMLhVT…