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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @PPALSorg
    RT @JFCConsultants: #RareDisease #RareDiseases @teaminspire @EparentConnect @SanfordCoRDS Helping to spread the word about raising the visi…

  • @DrDavidPearce
    RT @nature: A synthetic molecule blocks the proliferation of the viruses responsible for at least one-quarter of common colds #ResearchHigh…

  • @bcrittenden
    RT @SanfordBenF: I'm in Philly this morning for the @GlobalGenes #Rare Patient Advocacy Symposium! Let me know if you've got questions abou…

  • @DrDavidPearce
    RT @AACR: We join with the scientific community in recognizing International Clinical Trials Day. Clinical trials are a critical component…

  • @ataxiaandme
    @SeqComplete @ankushlab @DrDavidPearce @rarediseaseuk thank you for the insert #ATAXIA

  • @EparentConnect
    RT @JFCConsultants: #RareDisease #RareDiseases @teaminspire @EparentConnect @SanfordCoRDS Helping to spread the word about raising the visi…

  • @DrDavidPearce
    Key finding on a protein that helps prevent aggregation of other proteins in #neurons https://t.co/Peu3nLoRLw will… https://t.co/IBhYwfvRVc

  • @teaminspire
    RT @JFCConsultants: #RareDisease #RareDiseases @teaminspire @EparentConnect @SanfordCoRDS Helping to spread the word about raising the visi…

  • @JFCConsultants
    #RareDisease #RareDiseases @teaminspire @EparentConnect @SanfordCoRDS Helping to spread the word about raising the… https://t.co/svcGwDXItR

  • @GlobalGenes
    RT @SanfordBenF: I'm in Philly this morning for the @GlobalGenes #Rare Patient Advocacy Symposium! Let me know if you've got questions abou…

  • @SanfordBenF
    I'm in Philly this morning for the @GlobalGenes #Rare Patient Advocacy Symposium! Let me know if you've got questio… https://t.co/xl2sSmgWPr

  • @KimFish47768840
    RT @NAF_Ataxia: If you are NOT at #2018AAC - check out @SanfordCoRDS online and sign up for the #Ataxia patient registry at https://t.co/gB…

  • @SanfordCoRDS
    RT @rareundiagnosed: Netflix & The New York Times are filming a documentary series about people with undiagnosed medical conditions. The se…

  • @DrDavidPearce
    RT @nature: Scientific integrity needs to apply to how researchers treat people, not just to how they handle data, says @emsaurios https://…