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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @CalRare
    RT @GlobalGenes: On September 19 at 12pm CT, @SanfordCoRDS will host FREE webinar for the #raredisease community on working with a genetic…

  • @AtaxiaFacts
    RT @SanfordCoRDS: One more day until the CoRDS Workshop Webinar! Join us tomorrow at 10AM PT / 12PM CT / 1PM ET for a FREE, educational web…

  • @PROS_Foundation
    RT @SanfordCoRDS: One more day until the CoRDS Workshop Webinar! Join us tomorrow at 10AM PT / 12PM CT / 1PM ET for a FREE, educational web…

  • @HDAwareness
    RT @SanfordCoRDS: One more day until the CoRDS Workshop Webinar! Join us tomorrow at 10AM PT / 12PM CT / 1PM ET for a FREE, educational web…

  • @SanfordCoRDS
    One more day until the CoRDS Workshop Webinar! Join us tomorrow at 10AM PT / 12PM CT / 1PM ET for a FREE, education… https://t.co/2OTbyZ7e89

  • @DrDavidPearce
    RT @WHO: Vaccine-preventable diseases include: Cervical cancer Cholera Diphtheria Hep B Influenza Japanese encephalitis Measles Mumps Pertu…

  • @AtaxiaFacts
    Thank you @SanfordCoRDS for all you do for people with @RareDayUS and a great partnership with @NAF_Ataxia @Ataxiad… https://t.co/KJtOqfeBVZ

  • @SanfordHealth
    RT @SanfordCoRDS: Don't forget to join us next Wednesday, September 18th, 12PM CT for the CoRDS Workshop Webinar! #RareDisease #Patients #P…

  • @CORareAdvocate
    RT @JFCConsultants: Sharing a better link: @PPALSorg @teaminspire @EparentConnect @SanfordCoRDS hosting webinar for #raredisease patients,…

  • @SanfordCoRDS
    Don't forget to join us next Wednesday, September 18th, 12PM CT for the CoRDS Workshop Webinar! #RareDisease… https://t.co/34MZ2PNE8i

  • @SanfordCoRDS
    RT @JFCConsultants: Sharing a better link: @PPALSorg @teaminspire @EparentConnect @SanfordCoRDS hosting webinar for #raredisease patients,…

  • @SanfordCoRDS
    CoRDS team member @Austin_Letcher recently sat down with Dana to discuss our #raredisease registry and demystify th… https://t.co/jDj9N3cFK8

  • @ChrisBosworth
    RT @GlobalGenes: On September 19 at 12pm CT, @SanfordCoRDS will host FREE webinar for the #raredisease community on working with a genetic…

  • @LpldAlliance
    RT @GlobalGenes: On September 19 at 12pm CT, @SanfordCoRDS will host FREE webinar for the #raredisease community on working with a genetic…

  • @RarePOV
    RT @GlobalGenes: On September 19 at 12pm CT, @SanfordCoRDS will host FREE webinar for the #raredisease community on working with a genetic…