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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    RT @RareDR: #ICMYI: @US_FDA is releasing 6 new guidance documents intended to serve as the building blocks of a framework for advancing the…

  • @SafetySleeper
    RT JFCConsultants: Congratulations SanfordCoRDS on your new #RareDisease podcast. What an exciting adventure! Smit… https://t.co/59NPXeu7Lu

  • @EparentConnect
    RT @JFCConsultants: Congratulations @SanfordCoRDS on your new #RareDisease podcast. What an exciting adventure! @SmithSolve @PPALSorg @tea…

  • @ABatemanHouse
    RT @PPALSorg: Seeking opinions of #ProfessionalPatientAdvocatesinLifeSciences & #patientadvocacygroupleaders on educational needs. Visit ht…

  • @LMHF
    RT @PPALSorg: Seeking opinions of #ProfessionalPatientAdvocatesinLifeSciences & #patientadvocacygroupleaders on educational needs. Visit ht…

  • @MHohn7of9
    RT @KFS_Freedom: B the wave of the future 4 Rare Disease! Klippel-Feil patients & families, Pls take KFS Survey > https://t.co/urgvqI1oXc…

  • @jgersh1115
    RT @PPALSorg: Seeking opinions of #ProfessionalPatientAdvocatesinLifeSciences & #patientadvocacygroupleaders on educational needs. Visit ht…

  • @MrsBowers22
    RT @SanfordCoRDS: CoRDS Cast (podcast) is now available! This episode has general information about our program and how it started with an…

  • @SanfordCoRDS
    Today @Austin_Letcher is in Portland, Oregona for the 21st Stickler Involved People Conference. CoRDS hosts the… https://t.co/OZBSvvBYFI

  • @KevinMcElhinney
    RT @SanfordBenF: Looking for a new #raredisease #podcast? Check out the first episode of CoRDS Cast from the good folks here at @SanfordCo…

  • @Rose_of_Sharon8
    RT @KFS_Freedom: B the wave of the future 4 Rare Disease! Klippel-Feil patients & families, Pls take KFS Survey > https://t.co/urgvqI1oXc…

  • @paygeben
    RT @Rose_of_Sharon8: The road is long, but the payoff is LIFE. #RareDisease Paving the way Advocates. Patients. Parents. Friends. Family.…

  • @paygeben
    RT @KFS_Freedom: 😎YOU R 🗝️ KFS Awareness Day info > https://t.co/yQRqBL9AxV Aug 6th #KFS2018aware #KFStroll #KFSkeletonKey #KFStrong Activi…

  • @DrDavidPearce
    Taking several drugs has its complications. Study predicts complex side effect for up to 5 medications https://t.co/GoeccfffjX #BigData #AI

  • @DrDavidPearce
    Not all #Cancers are the same. This goes for #ProstateCancer too. Study breaks out sub-types by treatment response… https://t.co/Ameh2BaMxx