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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @SanfordCoRDS
    RT @ChildrensTumor: Pig Models and NF1, The New Research Frontier: A Conversation with @DrJWeimer @SanfordResearch https://t.co/Re5kDkeFh…

  • @johnnyjots
    @StanfordMed @raredisorders @SanfordCoRDS @NAF_Ataxia https://t.co/v23SzP8qdn

  • @jaimierobertson
    RT @SanfordCoRDS: CoRDS is the advocacy group for all #raredisease #patients & those without a support group, because rare is common for 30…

  • @parkinson_kay
    @ataxiaandme @johnnyjots @NAF_Ataxia @SanfordCoRDS @MVEG001 @RyanDaviesLibby @johnvevans @OrphanConf… https://t.co/3iigdN5e6a

  • @SanfordCoRDS
    RT @SanfordBenF: @SanfordResearch works to develop new therapies for rare diseases every day! Our @SanfordCoRDS registry ties patients to r…

  • @SanfordCoRDS
    RT @hnisimasu: Single-molecule movie of DNA search and cleavage by CRISPR-Cas9. https://t.co/3NQxmbvzJF

  • @SanfordResearch
    RT @SanfordBenF: @SanfordResearch works to develop new therapies for rare diseases every day! Our @SanfordCoRDS registry ties patients to r…

  • @SanfordBenF
    @SanfordResearch works to develop new therapies for rare diseases every day! Our @SanfordCoRDS registry ties patien… https://t.co/qUiUl3Eu8g

  • @KFS_Freedom
    RT @Rose_of_Sharon8: @DickDurbin @SenDuckworth 36 patient orgs oppose 2 Senate's proposed weakening of #OrphanDrug Tax Credit. We urge Cong…

  • @KFS_Freedom
    RT @Rose_of_Sharon8: @RepKinzinger 35 patient orgs in opposition to Senate's proposed weakening of the #OrphanDrug Tax Credit. We urge Cong…

  • @BCH_Rare
    RT @ataxiaandme: ICYMI yesterday @johnnyjots @NAF_Ataxia @SanfordCoRDS @MVEG001 @RyanDaviesLibby @johnvevans We launched our new #ata…

  • @Rose_of_Sharon8
    @DickDurbin @SenDuckworth 36 patient orgs oppose 2 Senate's proposed weakening of #OrphanDrug Tax Credit. We urge C… https://t.co/nvNh0ikqrt

  • @Rose_of_Sharon8
    @RepKinzinger 35 patient orgs in opposition to Senate's proposed weakening of the #OrphanDrug Tax Credit. We urge C… https://t.co/bvwai5fOJ6

  • @SanfordCoRDS
    RT @teaminspire: US scientists try 1st gene editing in the body https://t.co/f7pEPUZQb4 via @AP

  • @PipersKBF
    RT @Rose_of_Sharon8: NEW! Klippel-Feil syndrome Patient Registry. PATIENTS, provide your DATA! KFS Survey > https://t.co/9UAAMgqfkU Pls. R…