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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @RareAdvocacy
    RT @PPALSorg: The registration link for the Patient Advocate Certificate Training (PACT) course, a collaboration between @SanfordResearch,…

  • @Austin_Letcher
    RT @PPALSorg: The registration link for the Patient Advocate Certificate Training (PACT) course, a collaboration between @SanfordResearch,…

  • @CheckRare
    Benjamin Forred, Translational Research Project Manager at @SanfordCoRDS in South Dakota, discusses his organizatio… https://t.co/I6Pe0doDdF

  • @DrJWeimer
    RT @PPALSorg: The registration link for the Patient Advocate Certificate Training (PACT) course, a collaboration between @SanfordResearch,…

  • @DrDavidPearce
    RT @PPALSorg: The registration link for the Patient Advocate Certificate Training (PACT) course, a collaboration between @SanfordResearch,…

  • @bcrittenden
    RT @PPALSorg: The registration link for the Patient Advocate Certificate Training (PACT) course, a collaboration between @SanfordResearch,…

  • @SanfordBenF
    RT @PPALSorg: The registration link for the Patient Advocate Certificate Training (PACT) course, a collaboration between @SanfordResearch,…

  • @RachelleM_Dixon
    RT @PPALSorg: The registration link for the Patient Advocate Certificate Training (PACT) course, a collaboration between @SanfordResearch,…

  • @ataxiaandme
    RT @PPALSorg: The registration link for the Patient Advocate Certificate Training (PACT) course, a collaboration between @SanfordResearch,…

  • @PPALSorg
    The registration link for the Patient Advocate Certificate Training (PACT) course, a collaboration between… https://t.co/Eo93mkSUgo

  • @armantitanium
    @SanfordCoRDS @marklewismd Thanks for sharing!

  • @graceoflabrador
    RT @esteckler2: @Deeenst @LelenaPeacock @SanfordHealth Also they have @SanfordCoRDS which deals w rare diseases, well many as we know are p…

  • @SanfordCoRDS
    Registration for the #PatientAdvocacy Certificate Training program through @PPALSorg - Registration is limited, so… https://t.co/0jVaQVquuz

  • @esteckler2
    @Deeenst @LelenaPeacock @SanfordHealth Also they have @SanfordCoRDS which deals w rare diseases, well many as we kn… https://t.co/hZ5lB1Jdwt

  • @SanfordCoRDS
    Don't forget to submit your abstracts if you want to participate in RARE #DrugDevelopment Symposium at UPENN with… https://t.co/tdNLyfg2SH