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Patient advocacy groups (PAGs) representing rare diseases can partner with CoRDS to create a patient registry.
Patient Groups partner with CoRDS
Patient advocacy groups (PAGs) representing rare diseases can partner with CoRDS to create a patient registry.
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The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

  
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

  

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS

  • @SanfordBenF
    RT @KFS_Freedom: B the wave of the future 4 Rare Disease! Klippel-Feil patients & families, Pls take KFS Survey > https://t.co/urgvqI1oXc…

  • @PROS_Foundation
    @SanfordCoRDS CoRDS Cast Episode 2 Part 1 - Absolutely a great listen. Great job @MDAnews and @PPALSorg https://t.co/J0AE6ZLa1D

  • @Srotberg15
    RT @JFCConsultants: #raredisease @EparentConnect @teaminspire @SanfordCoRDS @PPALSorg I am just getting into podcasts. Just listened to @Ra…

  • @MHohn7of9
    RT @KFS_Freedom: KFS Awareness Day is MONDAY. This is us. We are #KFStrong. We won't back down. 75 beautiful reasons why we're on a mission…

  • @DrDavidPearce
    RT @SanfordResearch: A team of scientists including @DrJWeimer published new findings on distinguishing nerve sheath tumors from benign pl…

  • @Karen889510
    RT @Rose_of_Sharon8: Announcing a wonderful new partnership between @KFS_Freedom and @ThinkGenetic, the following entities are linked withi…

  • @dbrhseny
    RT @Rose_of_Sharon8: Announcing a wonderful new partnership between @KFS_Freedom and @ThinkGenetic, the following entities are linked withi…

  • @PatientWorthy
    RT @KFS_Freedom: Announcing our partnership w @ThinkGenetic on KFS Awareness Day! Article below! #KFStrong @GlobalGenes @TheMightySite @Rar…

  • @Ilovepigenetics
    RT @KFS_Freedom: @Raresupport @ThinkGenetic @GlobalGenes @TheMightySite @SanfordCoRDS @RareDiseases @PatientWorthy @harmonize4hope @RareAdv…

  • @GlobalGenes
    @KFS_Freedom @ThinkGenetic @TheMightySite @Raresupport @SanfordCoRDS @RareDiseases @PatientWorthy @harmonize4hope… https://t.co/jtpkQxk8uQ

  • @GlobalGenes
    RT @KFS_Freedom: Announcing our partnership w @ThinkGenetic on KFS Awareness Day! Article below! #KFStrong @GlobalGenes @TheMightySite @Rar…

  • @KFS_Freedom
    @Raresupport @ThinkGenetic @GlobalGenes @TheMightySite @SanfordCoRDS @RareDiseases @PatientWorthy @harmonize4hope… https://t.co/3FIhmUGnsj

  • @Ilovepigenetics
    RT @KFS_Freedom: Announcing our partnership w @ThinkGenetic on KFS Awareness Day! Article below! #KFStrong @GlobalGenes @TheMightySite @Rar…

  • @KFS_Freedom
    RT @Rose_of_Sharon8: Announcing a wonderful new partnership between @KFS_Freedom and @ThinkGenetic, the following entities are linked withi…

  • @gemini8gemini8
    RT @Rose_of_Sharon8: Announcing a wonderful new partnership between @KFS_Freedom and @ThinkGenetic, the following entities are linked withi…