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Patient advocacy groups (PAGs) representing rare diseases can partner with CoRDS to create a patient registry.
Patient Groups partner with CoRDS
Patient advocacy groups (PAGs) representing rare diseases can partner with CoRDS to create a patient registry.
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The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

  
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

  

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS

  • @SanfordCoRDS
    Calling all South Dakota natives in the #raredisease community - @RareAdvocates has travel stipends left for their… https://t.co/do9RywBwMi