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Patient advocacy groups (PAGs) representing rare diseases can partner with CoRDS to create a patient registry.
Patient Groups partner with CoRDS
Patient advocacy groups (PAGs) representing rare diseases can partner with CoRDS to create a patient registry.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @LouiseB08076032
    RT @SmithSolve: Yesterday we had the opportunity to experience the cutting-edge research happening at Sanford on an amazing tour of the lab…

  • @lseiders3
    RT @SanfordBenF: The topic of rare disease registries comes up often in the panel discussions at the #NORDSummit this week! They are valuab…

  • @SanfordBenF
    RT @ataxiaandme: The topic of #RareDisease registries comes up so often in discussions They are valuable tools to advance #research and u…

  • @ataxiaandme
    The topic of #RareDisease registries comes up so often in discussions They are valuable tools to advance… https://t.co/ywXZAEFAqJ

  • @ataxiaandme
    RT @SanfordBenF: The topic of rare disease registries comes up often in the panel discussions at the #NORDSummit this week! They are valuab…

  • @SanfordBenF
    The topic of rare disease registries comes up often in the panel discussions at the #NORDSummit this week! They are… https://t.co/6Sxw0hrR5a

  • @spicylilAnna
    RT @SanfordBenF: Patient registries are valuable tools for interacting with researchers and the FDA. @SanfordCoRDS works with advocates to…

  • @NeenaNizar
    RT @SanfordBenF: Patient registries are valuable tools for interacting with researchers and the FDA. @SanfordCoRDS works with advocates to…

  • @SanfordCoRDS
    RT @SanfordBenF: Patient registries are valuable tools for interacting with researchers and the FDA. @SanfordCoRDS works with advocates to…

  • @Austin_Letcher
    RT @SanfordBenF: Patient registries are valuable tools for interacting with researchers and the FDA. @SanfordCoRDS works with advocates to…

  • @DoubleTrojan
    @SanfordBenF @SanfordCoRDS @ekeeleymoore

  • @SanfordBenF
    Patient registries are valuable tools for interacting with researchers and the FDA. @SanfordCoRDS works with advoc… https://t.co/JTvka2DJoX

  • @SanfordBenF
    Looking forward to a productive time at the #NORDSummit over the next couple of days! Let me know if you're intere… https://t.co/WaiUglXe8t

  • @JensenKatieC
    @RareDiseases @SanfordBenF @SanfordCoRDS Awe thanks! @sueesherman is coming, so the @LAMFoundation will be well rep… https://t.co/mjGPqnvt9I

  • @RareDiseases
    @JensenKatieC @SanfordBenF @SanfordCoRDS We'll miss you this year, Katie!! Hope to see you next year! #NORDSummit