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Patient advocacy groups (PAGs) representing rare diseases can partner with CoRDS to create a patient registry.
Patient Groups partner with CoRDS
Patient advocacy groups (PAGs) representing rare diseases can partner with CoRDS to create a patient registry.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @catssite
    RT @HypersomniaNews: Time to UPDATE!! To everyone who is part of HF's patient registry, housed w/CoRDS at Sanford Health: keeping informati…

  • @dianevpowell
    RT @HypersomniaNews: Time to UPDATE!! To everyone who is part of HF's patient registry, housed w/CoRDS at Sanford Health: keeping informati…

  • @JFCConsultants
    #RareDiseases @OHFTweet @SanfordCoRDS @PPALSorg #OHF Request for Applications Rare #kidneystones Consortium Pilot P… https://t.co/WUlonaugbQ

  • @JulesSchlinsog
    RT @HypersomniaNews: Time to UPDATE!! To everyone who is part of HF's patient registry, housed w/CoRDS at Sanford Health: keeping informati…

  • @HypersomniaNews
    Time to UPDATE!! To everyone who is part of HF's patient registry, housed w/CoRDS at Sanford Health: keeping inform… https://t.co/jN8IyqKuND

  • @KFS_Freedom
    RT @Rose_of_Sharon8: New article via @INvisiblePro > https://t.co/FOb1SzGFJx 6 years of Rare Disease advocacy 4 Klippel-Feil. Patients bene…

  • @MichRit1
    RT @Rose_of_Sharon8: New article via @INvisiblePro > https://t.co/FOb1SzGFJx 6 years of Rare Disease advocacy 4 Klippel-Feil. Patients bene…

  • @Rose_of_Sharon8
    New article via @INvisiblePro > https://t.co/FOb1SzGFJx 6 years of Rare Disease advocacy 4 Klippel-Feil. Patients b… https://t.co/sbCEiBD723

  • @DrDavidPearce
    RT @BDSRA: Tomorrow is International Batten Awareness Day! #BattenDay2018 #MakeYourMark https://t.co/oO8SmvPHkt

  • @MHohn7of9
    RT @KFS_Freedom: Chronic pain - a fact for those living w Klippel-Feil syndrome, a rare disease affecting 1 in 42,000 #KFStrong @GlobalGene…

  • @EparentConnect
    RT @JFCConsultants: #raredisease @PPALSorg @EparentConnect @SanfordCoRDS @BDSRA @teaminspire June 9, 2018 is the first International #Bat…

  • @DrDavidPearce
    Personalized #cancer vaccine for #glioblastoma https://t.co/JpBqvytDGe shows great promise

  • @dianevpowell
    RT @HypersomniaNews: Austin Letcher (R) responds to questions about data use and the importance of patient registries at #BeyondSleepy in B…

  • @DrDavidPearce
    Digging deeper into #PrecisionMedicine https://t.co/k0rURIzl4R the right amount of #aspirin & #statins for good health #BigData

  • @DrDavidPearce
    Clinical trials in a dish? #CTiD https://t.co/1ZisW5dVTX expediting drug discovery #RareDisease #Neuroscience #iPSC