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Patient advocacy groups (PAGs) representing rare diseases can partner with CoRDS to create a patient registry.
Patient Groups partner with CoRDS
Patient advocacy groups (PAGs) representing rare diseases can partner with CoRDS to create a patient registry.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @ALGSAlliance
    RT @SanfordBenF: Connecting patients with researchers is our mission at @SanfordCoRDS. To witness such a passionate and inspiring group mee…

  • @EparentConnect
    RT @JFCConsultants: #raredisease @EparentConnect @PPALSorg @teaminspire If you haven't heard about @SanfordCoRDS then you need to watch thi…

  • @MaynoothNest
    Great story! #PPI #raredisease #science #research https://t.co/SGVdCpBwjc

  • @SanfordBrandonH
    RT @SanfordHealth: “When you meet these young warriors that are singing to Frozen, singing Disney songs and their parents are just starting…

  • @Srotberg15
    @SanfordCoRDS I was recently connected with Anna. She’s such a great advocate for Alagille Syndrome and the rare disease community.

  • @JFCConsultants
    @EparentConnect @ComplexChildMag @PPALSorg Check out the @SanfordCoRDS video on the #raredisease #alagillesyndrome.… https://t.co/wUeBDZfymU

  • @spicylilAnna
    RT @JFCConsultants: #raredisease @EparentConnect @PPALSorg @teaminspire If you haven't heard about @SanfordCoRDS then you need to watch thi…

  • @ann_donovan
    @NAF_Ataxia @SanfordCoRDS This form is too hard to fill out.

  • @spicylilAnna
    RT @SanfordHealth: “When you meet these young warriors that are singing to Frozen, singing Disney songs and their parents are just starting…

  • @SanfordHealth
    “When you meet these young warriors that are singing to Frozen, singing Disney songs and their parents are just sta… https://t.co/cbn01fPFwA

  • @SanfordHealth
    RT @shamy27: #RareDiseaseResearch @SanfordCoRDS @SanfordHealth is something spectacular. They work in such a collaborative environment! It…

  • @shamy27
    @SanfordCoRDS @ORDIndia Thanks for the retweet! 😁

  • @DrDavidPearce
    RT @SanfordCoRDS: CoRDS connects patients and researchers. Here's one video from a group of patients from the Alagille Syndrome Alliance me…

  • @shamy27
    #RareDiseaseResearch @SanfordCoRDS @SanfordHealth is something spectacular. They work in such a collaborative envir… https://t.co/WtI42oV4Ov

  • @spicylilAnna
    RT @shamy27: As far as opportunities of a lifetime go, this is one of them.@spicylilAnna & I are so grateful! I urge you all to watch this…