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Patient advocacy groups (PAGs) representing rare diseases can partner with CoRDS to create a patient registry.
Patient Groups partner with CoRDS
Patient advocacy groups (PAGs) representing rare diseases can partner with CoRDS to create a patient registry.
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The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

  
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

  

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS

  • @DrRozzy
    Another reason to love my phd advisor: he justifies my #coffee habit on twitter https://t.co/S5kOVaetAR

  • @DrDavidPearce
    #immunotherapies can treat some #cancer. Tweaking the immune system could help treat ALL cancers https://t.co/7krgBRFfFk #GeekyScience

  • @DrDavidPearce
    Drinking #Coffee could lead to a longer life? https://t.co/7bQuJdhkj8

  • @DrDavidPearce
    Understanding how a drug helps clear #cholesterol in Niemann Pick Type C #NPC1 as a therapy https://t.co/Httg2ppSbz #RareDisease

  • @DrDavidPearce
    Post-Zygotic, or, after conception #Mutations may underlie some cases of #Autism https://t.co/Eb3a7Wy2Cx #Neuroscience #Genetics

  • @DrDavidPearce
    New on #Epigenetics How to explain? Your children inherit your #genes AND what you might have done to them too! https://t.co/WPtPsYw12d

  • @DrDavidPearce
    How much of our 3.2 Billion #genetic code do we use? New estimate on junk #DNA https://t.co/bjefPDsFDX now say 25% is functional #BigData

  • @DrDavidPearce
    RT @NPRHealth: 'Dirt Is Good': Why Kids Need Exposure To Germs https://t.co/HUX2yodRUv

  • @DrDavidPearce
    roasted crickets and ants, mealworm cookies and cricket energy bars in the name of #research anyone? https://t.co/IHY1PN2Qmf #GeekyScience

  • @DrDavidPearce
    New target to stop #Neurodegeneration https://t.co/LKjj7FK9Te #RareDiseases #Neuroscience

  • @DrDavidPearce
    #StemCells to deliver #Cancer killing #Virus plus #PD-1 inhibitor stops #Metastasis in the #Brain https://t.co/qljhZ7ti6P #Neuroscience

  • @DrDavidPearce
    Can a #Tomato a day keep skin #Cancer at bay? https://t.co/bMaLmSGSQ1

  • @SanfordCoRDS
    RT @Kegottsleben: 7 Beauty Instagrammers With Disabilities to Follow https://t.co/bq7MFDmxV5 via @TheMightySite #Instagram #disability

  • @SanfordCoRDS
    RT @Primary_Immune1: Power of #RareDisease #Research Exemplified, Sadly So https://t.co/Ddo5OJacQq #SNRTG #BigData #genomics #genetics #sci…

  • @LButlerRocks
    #chocolate #cognition #ageing #health #diet https://t.co/A0bOuY5psy