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Patient advocacy groups (PAGs) representing rare diseases can partner with CoRDS to create a patient registry.
Patient Groups partner with CoRDS
Patient advocacy groups (PAGs) representing rare diseases can partner with CoRDS to create a patient registry.
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The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

  
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

  

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS

  • @marklewismd
    Starting now! https://t.co/AkOW9T4XKH

  • @WeAreNotSoRare
    RT @sudhee26: #RNUD #UDNI2019 next panel discussion on research collaborations for rare diseases #DrAnilRaina of @SanofiGenzyme #DrDavidPea…

  • @sudhee26
    #RNUD #UDNI2019 next panel discussion on research collaborations for rare diseases #DrAnilRaina of @SanofiGenzyme… https://t.co/1c448pSVIf

  • @Srotberg15
    RT @PPALSorg: Are you registered for the @SanfordCoRDS/@PPALSorg Patient Advocacy Certificate Training? This is a unique course of study fo…

  • @RareAdvocacy
    RT @PPALSorg: Are you registered for the @SanfordCoRDS/@PPALSorg Patient Advocacy Certificate Training? This is a unique course of study fo…

  • @PPALSorg
    Are you registered for the @SanfordCoRDS/@PPALSorg Patient Advocacy Certificate Training? This is a unique course o… https://t.co/4JvmtQpLl4

  • @RareAdvocacy
    RT @KFS_Freedom: JOIN @SanfordCords Event PPALS -Professional Patient Advocates in Life Sciences Course of Studies May10 Registration open!…

  • @Srotberg15
    RT @KFS_Freedom: JOIN @SanfordCords Event PPALS -Professional Patient Advocates in Life Sciences Course of Studies May10 Registration open!…

  • @Rose_of_Sharon8
    RT @KFS_Freedom: JOIN @SanfordCords Event PPALS -Professional Patient Advocates in Life Sciences Course of Studies May10 Registration open!…

  • @KFS_Freedom
    JOIN @SanfordCords Event PPALS -Professional Patient Advocates in Life Sciences Course of Studies May10 Registratio… https://t.co/lYBGC6ipNe

  • @GlobalGenes
    RT @GlobalFoundPD: Our very own Dr. Mousumi Bose continues to raise awareness about Rare Diseases and is presenting on the next @GlobalGene…

  • @GlobalFoundPD
    Our very own Dr. Mousumi Bose continues to raise awareness about Rare Diseases and is presenting on the next… https://t.co/NfSkzPAbQO

  • @SanfordCoRDS
    Brought to you by @SanfordCoRDS @SanfordResearch @GlobalGenes and @GlobalFoundPD #RareDisesase https://t.co/qm1ekX1HzH