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Researchers with IRB approval may apply to access the CoRDS registry. Participants will be contacted by CoRDS staff on behalf of any researchers who wish to include them in a research study or clinical trial.
Researchers apply for access.
Researchers with IRB approval may apply to access the CoRDS registry. Participants will be contacted by CoRDS staff on behalf of any researchers who wish to include them in a research study or clinical trial.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @Abrams_Nation
    RT JFCConsultants: #raredisease teaminspire PPALSorg SanfordCoRDS EparentConnect One can never get too much informa… https://t.co/gToYI935gS

  • @EparentConnect
    RT @JFCConsultants: #raredisease @teaminspire @PPALSorg @SanfordCoRDS @EparentConnect One can never get too much information about #clinica…

  • @JFCConsultants
    #raredisease @teaminspire @PPALSorg @SanfordCoRDS @EparentConnect One can never get too much information about… https://t.co/bhkDLSr9gQ

  • @DrDavidPearce
    RT @SanfordResearch: While waiting for a team and for his MCAT results, Zenner plans on trading in his shoulder pads and helmet for a lab c…

  • @YbcSupport
    RT @KFS_Freedom: Patients & families join RARE DISEASE DAY! > https://t.co/Sk0LbgRcpu @rarediseaseday @GlobalGenes @SanfordCoRDS @RareAdvoc…

  • @RareAdvocacy
    RT @Rose_of_Sharon8: An enthusiastic thank you and likewise! Just ask @Austin_Letcher, we were on a @SanfordCoRDS phone call last year, dis…

  • @Rose_of_Sharon8
    An enthusiastic thank you and likewise! Just ask @Austin_Letcher, we were on a @SanfordCoRDS phone call last year,… https://t.co/Bj4MWMFsv2

  • @Fight_CRMO
    RT @shamy27: I can’t believe it’s been a YEAR since I met the wonderful team @SanfordCoRDS @SanfordHealth 💖 thank you so much for investing…

  • @BingbingXLi
    RT @TuftsB: @FiredUpforALGS @SanfordCoRDS Rare disease groups know more about their disease than most physicians. This info collected is in…

  • @ordiusa
    RT @shamy27: I can’t believe it’s been a YEAR since I met the wonderful team @SanfordCoRDS @SanfordHealth 💖 thank you so much for investing…

  • @ORDIndia
    RT @shamy27: I can’t believe it’s been a YEAR since I met the wonderful team @SanfordCoRDS @SanfordHealth 💖 thank you so much for investing…

  • @Harsharajasimha
    RT @shamy27: I can’t believe it’s been a YEAR since I met the wonderful team @SanfordCoRDS @SanfordHealth 💖 thank you so much for investing…

  • @JeevaInformatic
    RT @shamy27: I can’t believe it’s been a YEAR since I met the wonderful team @SanfordCoRDS @SanfordHealth 💖 thank you so much for investing…