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Researchers with IRB approval may apply to access the CoRDS registry. Participants will be contacted by CoRDS staff on behalf of any researchers who wish to include them in a research study or clinical trial.
Researchers apply for access.
Researchers with IRB approval may apply to access the CoRDS registry. Participants will be contacted by CoRDS staff on behalf of any researchers who wish to include them in a research study or clinical trial.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @KFS_Freedom
    RT @SanfordBenF: This is a fantastic article from @GlobalGenes and @TheMightySite. @SanfordResearch knows connecting #raredisease patients…

  • @SanfordCoRDS
    RT @SanfordBenF: This is a fantastic article from @GlobalGenes and @TheMightySite. @SanfordResearch knows connecting #raredisease patients…

  • @SanfordBenF
    This is a fantastic article from @GlobalGenes and @TheMightySite. @SanfordResearch knows connecting #raredisease pa… https://t.co/0OZ4QJm3Uq

  • @MPSpapas
    RT @Kegottsleben: I’m incredibly honored and excited to join the @SanfordCoRDS advisory board! Looking forward to the first meeting! #RareD…

  • @Medical_Foods
    RT @Rose_of_Sharon8: Rare Disease Event via @SanfordCords FREE 2 attend! Symposium Feb 23 https://t.co/5sFmMYff3l & Summit Feb 24 https://t…

  • @KFS_Freedom
    RT @Rose_of_Sharon8: Rare Disease Event via @SanfordCords FREE 2 attend! Symposium Feb 23 https://t.co/5sFmMYff3l & Summit Feb 24 https://t…

  • @RunwayOfDreams1
    RT @Kegottsleben: I’m incredibly honored and excited to join the @SanfordCoRDS advisory board! Looking forward to the first meeting! #RareD…

  • @ataxiaandme
    RT @Kegottsleben: I’m incredibly honored and excited to join the @SanfordCoRDS advisory board! Looking forward to the first meeting! #RareD…

  • @Kegottsleben
    I’m incredibly honored and excited to join the @SanfordCoRDS advisory board! Looking forward to the first meeting!… https://t.co/2wPeMuApJI

  • @SanfordCoRDS
    We're so proud to have @Kegottsleben as a part of our advisory board #raredisease - Learn more about her story here… https://t.co/S9Jr4ZUqzx

  • @SanfordBenF
    RT @Rose_of_Sharon8: Rare Disease Event via @SanfordCords FREE 2 attend! Symposium Feb 23 https://t.co/5sFmMYff3l & Summit Feb 24 https://t…

  • @SanfordBenF
    @Rose_of_Sharon8 @SanfordCoRDS @GlobalGenes @ThinkGenetic @SanfordResearch @rarediseaseday @KFS_Freedom Thanks for… https://t.co/6tsPmZq5Rq

  • @SanfordCoRDS
    RT @Rose_of_Sharon8: Rare Disease Event via @SanfordCords FREE 2 attend! Symposium Feb 23 https://t.co/5sFmMYff3l & Summit Feb 24 https://t…

  • @Rose_of_Sharon8
    Rare Disease Event via @SanfordCords FREE 2 attend! Symposium Feb 23 https://t.co/5sFmMYff3l & Summit Feb 24… https://t.co/XVlIPhT7XX

  • @SanfordCoRDS
    RT @RareAdvocates: Funding for NIH is widely supported by the #raredisease community. A recent blogpost by @NIHDirector highlights biomedic…