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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    RT @SanfordResearch: #FunFactFriday The @Sanford PROMISE hosted over 3500 regional students during the 2017/2018 school year https://t.co/…

  • @SanfordBenF
    @FarnieVanHoutan @GlobalGenes @EveryLifeOrg @SanfordResearch @SanfordCoRDS @BDSRA What a small world! Perhaps we'l… https://t.co/v20ZOpGCYf

  • @FarnieVanHoutan
    @SanfordBenF @GlobalGenes @EveryLifeOrg @SanfordResearch @SanfordCoRDS Our @BDSRA Batten conf will be in Nashville too!

  • @Raresupport
    RT @KFS_Freedom: Rare Disease Community please RETWEET! 😎 KFS Awareness all Month! Info > https://t.co/yQRqBL9AxV What is KFS? > https://…

  • @SanfordResearch
    RT @SanfordBenF: I hope to see you in Nashville this weekend at @GlobalGenes & @EveryLifeOrg's #RAREontheRoad event! I'll be there represe…

  • @SanfordBenF
    @spicylilAnna @GlobalGenes @EveryLifeOrg @SanfordResearch @SanfordCoRDS @ALGSAlliance It'll be so great to catch up! Travel safely!

  • @Austin_Letcher
    RT @SanfordBenF: I hope to see you in Nashville this weekend at @GlobalGenes & @EveryLifeOrg's #RAREontheRoad event! I'll be there represe…

  • @Srb1970Rita
    RT @KFS_Freedom: Rare Disease Community please RETWEET! 😎 KFS Awareness all Month! Info > https://t.co/yQRqBL9AxV What is KFS? > https://…

  • @AngieRowe
    RT @KFS_Freedom: Rare Disease Community please RETWEET! 😎 KFS Awareness all Month! Info > https://t.co/yQRqBL9AxV What is KFS? > https://…

  • @AngieRowe
    RT @SanfordBenF: I hope to see you in Nashville this weekend at @GlobalGenes & @EveryLifeOrg's #RAREontheRoad event! I'll be there represe…

  • @ZaleisThemself
    RT @KFS_Freedom: Rare Disease Community please RETWEET! 😎 KFS Awareness all Month! Info > https://t.co/yQRqBL9AxV What is KFS? > https://…

  • @SanfordCoRDS
    RT @SanfordBenF: I hope to see you in Nashville this weekend at @GlobalGenes & @EveryLifeOrg's #RAREontheRoad event! I'll be there represe…

  • @krsable
    RT @KFS_Freedom: Rare Disease Community please RETWEET! 😎 KFS Awareness all Month! Info > https://t.co/yQRqBL9AxV What is KFS? > https://…

  • @AdelleConexxion
    RT @KFS_Freedom: Rare Disease Community please RETWEET! 😎 KFS Awareness all Month! Info > https://t.co/yQRqBL9AxV What is KFS? > https://…

  • @GlobalGenes
    RT @KFS_Freedom: Rare Disease Community please RETWEET! 😎 KFS Awareness all Month! Info > https://t.co/yQRqBL9AxV What is KFS? > https://…