Image Rotator

Researchers with IRB approval may apply to access the CoRDS registry. Participants will be contacted by CoRDS staff on behalf of any researchers who wish to include them in a research study or clinical trial.
Researchers apply for access.
Researchers with IRB approval may apply to access the CoRDS registry. Participants will be contacted by CoRDS staff on behalf of any researchers who wish to include them in a research study or clinical trial.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    RT @GlobalGenes: #RARECast: Stem Cell Gene Therapy Restores Immune System in Kids with SCID https://t.co/kHzNGT72JX via @GlobalGenes

  • @DrDavidPearce
    RT @RareDR: Europe Review Board Gives Thumbs Up to BioMarin's #BattenDisease Drug https://t.co/6uqbsQJ1wx $BMRN @bdsra

  • @SanfordCoRDS
    RT @UDNconnect: “We’re going to try to figure you out.” - Dr. Stan Nelson (@nelsongenomics) https://t.co/mwMokri0Cc #RareDisease #undiagno…

  • @SanfordCoRDS
    RT @PPALSorg: @JFCConsultants will be giving her lecture "Best Practices Working With Non Profits" at https://t.co/0q9thruC1k #RareDisease…

  • @JFCConsultants
    RT @PPALSorg: @JFCConsultants will be giving her lecture "Best Practices Working With Non Profits" at https://t.co/0q9thruC1k #RareDisease…

  • @PPALSorg
    @JFCConsultants will be giving her lecture "Best Practices Working With Non Profits" at https://t.co/0q9thruC1k… https://t.co/3brZ40Eusb

  • @DrDavidPearce
    RT @SanfordHealth: Sanford Health is now enrolling eligible cancer patients in the national TAPUR study. Read more. #SanfordNextGen https:/…

  • @DrDavidPearce
    RT @SanfordHealth: Sanford’s breakthrough stem cell therapy trial for shoulder injuries is available here in the Dakotas. @WDAYnews: https:…

  • @SanfordCoRDS
    RT @PPALSorg: Join us for David LaGreca's lecture "Maintaining a Patient Advocacy Organization" https://t.co/0q9thruC1k #RareDisease @Sanf…

  • @PPALSorg
    Join us for David LaGreca's lecture "Maintaining a Patient Advocacy Organization" https://t.co/0q9thruC1k… https://t.co/49XHn5MOxK

  • @JFCConsultants
    RT @PPALSorg: @PPALSorg welcomes Diane Dorman to https://t.co/0q9thruC1k for her lecture "Intro to Rare Disease Public Policy" @SanfordCoRD…

  • @RebekahDorr
    RT @PPALSorg: @PPALSorg welcomes Diane Dorman to https://t.co/0q9thruC1k for her lecture "Intro to Rare Disease Public Policy" @SanfordCoRD…

  • @pop_popculture
    RT @PPALSorg: @PPALSorg welcomes Diane Dorman to https://t.co/0q9thruC1k for her lecture "Intro to Rare Disease Public Policy" @SanfordCoRD…

  • @SanfordCoRDS
    RT @PPALSorg: @PPALSorg welcomes Diane Dorman to https://t.co/0q9thruC1k for her lecture "Intro to Rare Disease Public Policy" @SanfordCoRD…

  • @PPALSorg
    @PPALSorg welcomes Diane Dorman to https://t.co/0q9thruC1k for her lecture "Intro to Rare Disease Public Policy"… https://t.co/HIdUCN0AY6