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Researchers with IRB approval may apply to access the CoRDS registry. Participants will be contacted by CoRDS staff on behalf of any researchers who wish to include them in a research study or clinical trial.
Researchers apply for access.
Researchers with IRB approval may apply to access the CoRDS registry. Participants will be contacted by CoRDS staff on behalf of any researchers who wish to include them in a research study or clinical trial.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @Lacki123
    RT @SanfordResearch: .@DrDavidPearce talks about the exciting field of stem cells with Dr.Alt from ISAR Klinikum in Munich Germany https:/…

  • @SanfordCoRDS
    Are Our Terrible #Genetic #Privacy Laws Hurting #Science? #RareDisease https://t.co/Riz85psvS6

  • @SanfordCoRDS
    Share your story in support of the #OPENAct like this #raredisease advocate @ngly1org @RareAdvocates @GlobalGenes https://t.co/vTGSsLPSBZ

  • @DrAllisonW
    RT @SanfordResearch: .@DrDavidPearce talks about the exciting field of stem cells with Dr.Alt from ISAR Klinikum in Munich Germany https:/…

  • @SanfordResearch
    .@DrDavidPearce talks about the exciting field of stem cells with Dr.Alt from ISAR Klinikum in Munich Germany https://t.co/JZ4CzcSsxM

  • @DrAllisonW
    RT @SanfordResearch: @DrDavidPearce & @DrAllisonW kick-off the inaugural Cellular Therapies Conference #SanfordNextGen #SanfordResearch ht…

  • @SanfordResearch
    .@PLOSONE article by @DrDavidPearce and @DrJWeimer characterizes new CLN2 mouse model. #battendisease https://t.co/hkPlnMLG9r

  • @technoxray
    RT @SanfordResearch: Sanford scientists @DrJWeimer @DrDavidPearce Dr.Francis Dr.Kota discuss stem cells at Sanford Cellular Therapies Confe…

  • @DrDavidPearce
    RT @SanfordResearch: Sanford scientists @DrJWeimer @DrDavidPearce Dr.Francis Dr.Kota discuss stem cells at Sanford Cellular Therapies Confe…

  • @SanfordResearch
    Sanford scientists @DrJWeimer @DrDavidPearce Dr.Francis Dr.Kota discuss stem cells at Sanford Cellular Therapies Co… https://t.co/AgjAdn3Sps

  • @SanfordStacy
    RT @SanfordResearch: @DrDavidPearce & @DrAllisonW kick-off the inaugural Cellular Therapies Conference #SanfordNextGen #SanfordResearch ht…

  • @SanfordResearch
    @DrDavidPearce & @DrAllisonW kick-off the inaugural Cellular Therapies Conference #SanfordNextGen #SanfordResearch https://t.co/aOJR2Wvgvn

  • @DrDavidPearce
    Bacteria in your gut can influence #brain function & disease https://t.co/sPMlE3pGNy #Microbiome #RareDiseases

  • @DrDavidPearce
    #Sunflower #genome completed https://t.co/DwEGnj8kQW #GeekyScience

  • @DrDavidPearce
    Are elevated #platelets in blood an indicator of #cancer https://t.co/oHD1nZmXwH