Image Rotator

Researchers with IRB approval may apply to access the CoRDS registry. Participants will be contacted by CoRDS staff on behalf of any researchers who wish to include them in a research study or clinical trial.
Researchers apply for access.
Researchers with IRB approval may apply to access the CoRDS registry. Participants will be contacted by CoRDS staff on behalf of any researchers who wish to include them in a research study or clinical trial.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    3D #genome assembly https://t.co/JuWSj101GK new fast & cheap method to sequence #DNA #BigData

  • @DrDavidPearce
    Understanding the basis of BICD2 syndrome https://t.co/LC3b1Ut0oM #rarediseases

  • @SarestBearest
    ❤️ #RareDisease #hypermobileEhlersDanlosSyndrome #OPENACT https://t.co/z0JGk8l94m

  • @SanfordCoRDS
    Importance of Stakeholder #Research in #RareDisease #DrugDevelopment- that means #patients & #patientadvocacy groups https://t.co/Are5wmWbKJ

  • @SanfordCoRDS
    This is what #OPENACT means to #patients w/ one of the 95% of #rarediseases that have no cure/treatment #RareDisease https://t.co/ZHzzZAVUrs

  • @SanfordCoRDS
    This month @senorrinhatch & @amyklobuchar discussed #RareDiseases in Colloquy to commemorate #RareDisease Day https://t.co/5MBmVn6ugV

  • @SanfordCoRDS
    RT @NDC_Medicine: What happens when #kids r exposed 2 #children with #rarediseases for the 1st time? Watch https://t.co/Y6Bt38X4J9 #mom #da…

  • @RevonSystems
    Thx for the follow, @SanfordCoRDS. We help pharma run natural history studies & allow them 2 enroll patients quickly ㏌to confirmatory trials.

  • @ataxiaandme
    @findacure_fdn @PRNewswire @SanfordCoRDS #RareDisease #SmallWorld https://t.co/2DmFReap4W

  • @alanROYGBIV
    RT @ataxiaandme: It's a #Smallworld on #ataxia #raredisease adventures @SanfordCoRDS Display @NAF_Ataxia cc @RaremarkHealth https://t.co…

  • @SanfordCoRDS
    RT @ataxiaandme: It's a #Smallworld on #ataxia #raredisease adventures @SanfordCoRDS Display @NAF_Ataxia cc @RaremarkHealth https://t.co…

  • @ataxiaandme
    It's a #Smallworld on #ataxia #raredisease adventures @SanfordCoRDS Display @NAF_Ataxia cc @RaremarkHealth https://t.co/vhvGsUzJL2

  • @DrDavidPearce
    Structure of #Zika determined https://t.co/Xc0mwzziUg allowing an understanding to target and treat this #Virus

  • @DrDavidPearce
    Blood test for #BreastCancer patients predicting survival in advanced cases https://t.co/j8H14pOSAt

  • @DrDavidPearce
    #Gene silencing to reduce #Cholesterol https://t.co/69joHLZMiy #RNAi #GeekyScience