Join CoRDS. Help Accelerate Research.
If you or a family member have been diagnosed with a rare disease, an uncommon disease with unknown prevalence, or have not yet received a diagnosis you are invited to participate in the CoRDS registry. Enrollment is simple and was designed to be brief.
Enrollment is a two-step process.
- Step 1: Complete the CoRDS Registry Screening Form. If you choose online enrollment, CoRDS personnel will send you a unique username and password and link to our secure portal. If you choose mail-based enrollment, enter your mailing address in the Screening Form and CoRDS Personnel will send you the forms necessary to enroll.
- Step 2: Log-in to the secure CoRDS Registry Enrollment portal to complete the informed consent form and questionnaire. Upon logging into the portal, the informed consent form will pop up; after the consent form is complete you will be taken to a landing page with a link to the questionnaire. After completing the questionnaire and clicking submit, the enrollment process is complete!
Your information is stored in a secure database and is kept confidential. CoRDS Personnel will contact you annually to update your information and will notify you of research opportunities for which you are eligible.
If you have questions about CoRDS or the enrollment process, please visit our FAQ page or contact CoRDS personnel.