The Great Plains Rare Disease Summit

Saturday, May 11, 2019
Sanford Research Center, Sioux Falls, SD

Mark your calendars for the 2019 rare disease community event. At this event, people living with a rare disease and/or their caregivers will be able to:

  • Meet with scientists researching rare disease
  • Attend speaker panels with presentations followed by question and answer sessions
  • Visit with local organizations and vendors that support the rare disease community

Join us for a day of learning, networking and most importantly, connecting. If you are interested in hosting a booth, please email

This event is free to attendees.

Schedule of Topics




Check back for information on the 2018 Great Plains Rare Disease Summit.

For questions, contact us
Phone: (877) 658-9192

 Please note that child care will not be provided at the event. We apologize for the inconvenience.