Enroll in CoRDS

Join CoRDS. Help Accelerate Research.

If you or a family member have been diagnosed with a rare disease, an uncommon disease with unknown prevalence, have not yet received a diagnosis, or if you or a family member is an unaffected carrier of a rare disease, you are invited to participate in the CoRDS registry. Enrollment is simple and was designed to be brief.

Complete the CoRDS Registry Screening Form. If you choose online enrollment, two emails will be automatically sent by the CoRDS Patient Enrollment System (PES). Included in the emails will be a unique username and password, along with a link to our secure portal. Follow the link where you will be prompted with instructions on how to enroll and designate your new password.

If you choose mail-based enrollment, enter your mailing address in the Screening Form and CoRDS Personnel will send you the forms necessary to enroll. Please be sure to include your address in the format required by the USPS.

Your information is stored in a secure database and is kept confidential. CoRDS Personnel will contact you annually to update your information and will notify you of research opportunities for which you are eligible.

If you have questions about CoRDS or the enrollment process, please visit our FAQ page or contact CoRDS personnel.