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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    RT @AACR: Tobacco affects more than just the lungs. http://t.co/6JVJCDK89t #WorldNoTobaccoDay #NoTobacco http://t.co/cyGMowOXxZ

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    Hey Dakota,Tees & Hoodie are named by U! ORDER NOW!: http://t.co/gLBk2sbpyq .Goodbye @SanfordCoRDS http://t.co/69qEAoOcJd

  • @DrDavidPearce
    RT @Surgeon_General: #SecondHandSmoke causes respiratory & ear infections & #asthma attacks in children. More reasons to be #SmokeFree http…

  • @DrDavidPearce
    Genetic predictor to the effectiveness of #immunotherapy reported http://t.co/KKxy2FYCas #personalizedmedicine

  • @DrDavidPearce
    Study estimates new #cancer diagnoses at 14.9 million per year globally http://t.co/IsdgN6JnEs

  • @DrDavidPearce
    RT @SanfordPROMISE: 2015 It's All About Science Festival is 2 weeks away! Visit http://t.co/cH0ETgoYQm for details. Can't wait! http://t.c…

  • @DrDavidPearce
    DNA sequence of DAT1, encoding a Dopamine Transporter may influence your #Leadership decisions http://t.co/sC0giWZZOo #personalizedmedicine

  • @DrDavidPearce
    International Society for Cellular Therapy #ISCT2015 annual meeting http://t.co/P98xaKy6Fc future of #RegenerativeMedicine being presented

  • @DrDavidPearce
    @BellaTrouw @SanfordHealth thanks to you too for great organization of the symposium!

  • @DrDavidPearce
    Key target in #BreastCancer identified for development of #metastatic disease http://t.co/xiZiAiGZz4 #EdithSanford

  • @MPSpapas
    RT @orphandruganau: #RareDiseaseDay From .@SeqComplete ▸ stories via @SanfordCoRDS @AtypicalHUS @MPSpapas http://t.co/U6LJ5Ht2GP

  • @orphandruganau
    #RareDiseaseDay From .@SeqComplete ▸ stories via @SanfordCoRDS @AtypicalHUS @MPSpapas http://t.co/U6LJ5Ht2GP

  • @SanfordCoRDS
    Passed by @HouseCommerce last Thursday, this #legislation will help #raredisease patients http://t.co/Bw77lwAFRV

  • @DrDavidPearce
    #Gene targeting to convert female Mosquitos to males http://t.co/C3Lc99QYLT to control spread of this species #GeekyScience

  • @DrDavidPearce
    How #neurons and blood vessels come together http://t.co/6hHhECn8VR providing clearer picture for study of some #rarediseases