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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @SanfordCoRDS
    RT @RareGenomics: I carried my son around an Ironman to beat the #RareDisease killing him https://t.co/Cxh9rZojYD https://t.co/gnDm9HQI27

  • @congenitalhi
    @SanfordCoRDS @theABTA Incredible!! Love this. That is solidarity. #FatheroftheYear

  • @SanfordCoRDS
    #CRISPR #Therapeutics is using #gene editing to tackle #raredisease https://t.co/aCYVUY3EMv https://t.co/UA4WjMKvxZ

  • @SanfordCoRDS
    What does the #BREXIT from the #EU mean for the #UK #raredisease community? https://t.co/pjH8gjX5nV

  • @SanfordCoRDS
    Hamilton teen with rare aging disorder vows to ‘keep fighting’ #raredisease https://t.co/WQSq2lhHiP

  • @BlountsAwareUK
    @SanfordCoRDS 😢 💙💙💙

  • @SanfordCoRDS
    When I Have to Answer Hurtful Questions About My Daughter's #RareDisease #blountsdisease @BlountsAwareUK https://t.co/xrt33FI8MH

  • @SanfordCoRDS
    Woman wakes up from surgery with a British accent... "Foreign Accent Syndrome" has no known cure #raredisease https://t.co/FbfRgdHfKM

  • @SanfordCoRDS
    American Multiple #Endocrine #Neoplasia Support Seminar #raredisease @AMEN_SUPPORT https://t.co/wLIUbSt4u1 https://t.co/qEJ1kESab0

  • @IHaveIIH
    The latest I Have IIH Foundation! https://t.co/OLEskD6Kh9 Thanks to @brainspine @SanfordCoRDS @anyadei #raredisease #gpnews

  • @SanfordCoRDS
    France to invest millions of euros in #raredisease & cancer-fighting #genome #medicine @RFI_English https://t.co/5DX48WjAWN

  • @SanfordCoRDS
    Easily avoidable #raredisease #shakenbabysyndrome @PURPLEcrying @NCSBS @SBSyndrome @tiffverzal https://t.co/zxxvTsouBG

  • @DrDavidPearce
    RT @SanfordCoRDS: How to join CoRDS #uncommondisease #raredisease #undiagnosed #unaffectedcarrier #patient https://t.co/Yq0dEaBRhP https://…

  • @SanfordCoRDS
    His solution was to build #organoids - #3D mini-organs grown in the lab from #stemcells #raredisease #cysticfibrosis https://t.co/r2w0D5Aq5A

  • @SanfordCoRDS
    #Genomics is smart, according to list of 50 Smartest Companies - "#Data is #bigbusiness in #genomics" @FLGenomics https://t.co/HmvfLXzq3t