Image Rotator

Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    RT @FacingOurRisk: #Geneticcounseling before #genetictesting provides greater knowledge & satisfaction with the proces. #ABOUTNework https:…

  • @Lola16Leon
    RT @OrphanConf: Joan Han @LeBonheurChild @uthsc will be presenting at @SanfordHealth's 6th Annual #RareDisease Symp. @SanfordCords https://…

  • @OrphanConf
    Joan Han @LeBonheurChild @uthsc will be presenting at @SanfordHealth's 6th Annual #RareDisease Symp. @SanfordCords https://t.co/fAqT3lm1B1

  • @SanfordCoRDS
    3 new #patient #rarediseases #rarediagnoses enrolled (283 total) #Aceruloplasminemia Anomaly of #Chromosome16 Congenital #myasthenicsyndrome

  • @SanfordCoRDS
    Don't forget to register for this year's #WODC2016! Check out the @OrphanConf agenda here: https://t.co/ZB2Ltg5fc9 #raredisease #orphandrug

  • @gratefull080504
    Thanks for the recent follow @healthcarechg @SanfordCoRDS @ONSAlec Happy to connect :) have a great Saturday. 🔷By https://t.co/fkoQXL9Kht 🔷

  • @DrDavidPearce
    RT @SanfordHealth: #sanfordortho & #sanfordresearch are doing great things to give athletes an edge. https://t.co/DIENR6Hguf

  • @DrDavidPearce
    RT @WHO: Today is International Day of Zero Tolerance for Female Genital Mutilation. Let's empower health workers to #endFGM https://t.co/t…

  • @ChadBirger
    Could being smelly be healthier for us? https://t.co/fWoGuIe8rT

  • @RichardEWillard
    RT - DrDavidPearce - Being tall or short makes you more or less prone to develop #cancer #HeartDisease #Diabetes … https://t.co/GCuV3PmNR6

  • @DrDavidPearce
    Rapid genetic test for all forms of cystic fibrosis https://t.co/oNbNM6zKTr #CFTR #rarediseases

  • @DrDavidPearce
    Deodorant affects your #Microbiome https://t.co/B1WGKnz4T1

  • @DrDavidPearce
    Being tall or short makes you more or less prone to develop #cancer #HeartDisease #Diabetes https://t.co/uUxKqGP6a6 #GeekyScience

  • @DrDavidPearce
    #Immunotherapy for #glioblastoma https://t.co/gkUXqiWgbU

  • @cathcoste
    RT @SanfordCoRDS: Thanks for sharing @CD_SouthDakota! Spots are filling up fast for the 6th Annual @SanfordHealth #raredisease Symp. https:…