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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    RT @SanfordStacy: In Hollywood to support @sanfordhealth scientist Dr. Jill Weimer. Watch for her on @TheDoctors soon. #sanfordresearch htt…

  • @KFS_Freedom
    Craniofacial differences affect those with Klippel-Feil Syndrome. #Embrace #Love https://t.co/JthF24uKAP

  • @SanfordCoRDS
    September Is #Craniofacial #Awareness /#Acceptance Month! http://t.co/3UjK7v1PuQ via @HPLifestyle @KFS_Freedom @GlobalGenes @RareDiseases

  • @DrDavidPearce
    Basis of #raredisease with no name genetically characterized http://t.co/DhK5nU7rYD

  • @DrDavidPearce
    #Genomics uncovers susceptibility to liver damage http://t.co/U8AJ8KydqS

  • @DrDavidPearce
    Gene variant may delay onset of #Alzheimers disease http://t.co/73PRn7ms8B #personalizedmedicine #neuroscience

  • @SanfordCoRDS
    Congratulations to LMSarcoma Direct #Research on the successful launch of their #raredisease #patientregistry http://t.co/rEJc8BpLQW @ORDR

  • @SanfordCoRDS
    Welcome our new #rare #disease partner @ML4_Foundation! Congratulations on the successful launch of your #registry! http://t.co/0u7lg5vhwh

  • @marjmlksatx
    @SanfordCoRDS #CRPS Celebrity Chef @CMattocks1 documentary http://t.co/Cs6u10TlO4 http://t.co/NWN9dBsX4a

  • @DrDavidPearce
    Dr. Dog? Canine referral? Dogs that can sniff and detect prostate #cancer from urine http://t.co/xe1f6WjQVR

  • @DrDavidPearce
    Nano-device delivers CRISPR gene-editing to cells http://t.co/k2IT81mAAU potential for #genetic correction of #rarediseases #GeekyScience

  • @DrDavidPearce
    #SiblingRivalry http://t.co/mZXeB4ZXrO study shows genetics of who might be more successful in school #personalizedmedicine

  • @DrDavidPearce
    http://t.co/r8T35Jn6k1 Baby really is part of Mom! Study shows fetal cells take up residence in Mom during #pregnancy

  • @DrDavidPearce
    #GeneTherapy to rescue brain cells http://t.co/16e6exXNQS potential for #Alzheimers #rarediseases

  • @l_stavropoulou
    @Primary_Immune1 @SanfordCoRDS @IslasSmiles @findacure_fdn @RareDiseasesGr @eurordis @RareDiseases @GlobalGenes https://t.co/hZG1faWAPM