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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @SanfordCoRDS
    Development of #BayaTree is now complete and so the beta testing begins! @NAF_Ataxia @4pSupportGroup @11pdeletion @CdLSFoundation Plz share!

  • @SDFatPhRMA
    Good crew! @AfternoonNapper @Hope_for_KB @SanfordCoRDS @SusannahFox @markdlim @GeneticAlliance @collabchem @teaminspire @DrJudyStone

  • @AfternoonNapper
    @Hope_for_KB Connect w/ @SanfordCoRDS, @SusannahFox, @markdlim, @GeneticAlliance, @collabchem, @teaminspire, @DrJudyStone, @SDFatPhRMA.

  • @Iklan_twit1
    Hi @SanfordCoRDS RT this tweet if you AGREE, BUY this T-shirt if you CARE, buy here http://t.co/D6BvHWb5Qm http://t.co/MJLLWAOB4X

  • @kimfndhope
    RT @FNDHope: @SanfordCoRDS @FNDScotland @FNDHopeUSA @kimfndhope We look forward to teaming up to help patients and researchers connect.

  • @FNDHope
    @SanfordCoRDS @FNDScotland @FNDHopeUSA @kimfndhope We look forward to teaming up to help patients and researchers connect.

  • @SanfordCoRDS
    New mutation found, in a gene involved in intracellular trafficking (SNX14) @NAF_Ataxia @ATCure #CareAboutRare http://t.co/keo861DU0T

  • @SanfordCoRDS
    @orphandruganau @GlobalGenes @LindseyMesservy @Georgia_Bio Great resource!

  • @SanfordCoRDS
    @SeqComplete ... Thanks for the resource! https://t.co/8iVWgMmK30

  • @SanfordCoRDS
    Thank you! @FNDHope @FNDScotland @FNDHopeUSA @kimfndhope ... We look forward to working with you! https://t.co/bFZJjlQXXK

  • @SanfordCoRDS
    Congrats to @l_mortensen on being awarded the Maher Family Grant @SoftBonesHPP #hypophosphatasia #HPP #CareAboutRare https://t.co/c5bDKXHswJ

  • @SoftBonesHPP
    Breaking News: Soft Bones Grant Winner http://t.co/quGVV4zdaz #HPPGrant #RareDisease #RARE @RareDiseases @SanfordCoRDS @SanfordBurnham

  • @DrDavidPearce
    Sanford Children's Health Research Center http://t.co/5qmxkvIt3d devoted to research on child health and disease

  • @SanfordCoRDS
    @GlobalGenes highlights the importance of #collaboration between key #stakeholders in #raredisease #research http://t.co/CAh2Rh4hyI

  • @SeqComplete
    #RareDiseaseDay is out! http://t.co/zfhIzW0NIW Stories via @Init4Health @kunjapur @SanfordCoRDS