Image Rotator

Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    Early diagnosis of speech and language disorders of childhood https://t.co/eKBl62b3DD

  • @DrDavidPearce
    New #Statistical tools for interpreting #BigData https://t.co/F1ZfTuvgaZ

  • @DrDavidPearce
    #Genetic profile for risk of coronary heart disease #CHD https://t.co/baGbys0TC1 #PersonalizedMedicine

  • @DrDavidPearce
    Could a tattoo be key to drug delivery for chronic #disease https://t.co/wp76YXpkAA

  • @DrDavidPearce
    Global map of how #genes are wired to coordinate expression in cells https://t.co/6W8JkUzUDj #GeekyScience #Genetics

  • @DrDavidPearce
    RT @SanfordHealth: #SanfordResearch among group to help @NIH study effects of environmental exposures on child health & development. https…

  • @SleepyHeadCtrl
    RT @pwn4pwn: PWN4PWN and @SanfordCoRDS reaching the final stage of a new #narcolepsy register #RareDisease #workinprogress https://t.co/UwQ…

  • @SanfordCoRDS
    RT @pwn4pwn: PWN4PWN and @SanfordCoRDS reaching the final stage of a new #narcolepsy register #RareDisease #workinprogress https://t.co/UwQ…

  • @SleepyAmerica
    RT @pwn4pwn: PWN4PWN and @SanfordCoRDS reaching the final stage of a new #narcolepsy register #RareDisease #workinprogress https://t.co/UwQ…

  • @pwn4pwn
    PWN4PWN and @SanfordCoRDS reaching the final stage of a new #narcolepsy register #RareDisease #workinprogress https://t.co/UwQwOkJM9a

  • @SanfordCoRDS
    Dr Kaufman @NIH - collaborate to make a difference ... partner, collaborate, leverage #technology #RareDisease #2016GGSummit @GlobalGenes

  • @SanfordCoRDS
    Every #raredisease #patient counts! CoRDS collects #data on any and all #rarediseases, even #undiagnosed & unaffected carriers #2016GGSummit

  • @SanfordCoRDS
    #PatientAdvocates, #caregivers and people affected by #rarediseases are encouraged to complete this 10 minute survey https://t.co/GIKs3YVMMR

  • @SanfordCoRDS
    No #patientadvocacy group & want to share your #undiagnosed #raredisease #data for #research? - Enroll in CoRDS! #2016GGSummit @GlobalGenes

  • @RaremarkHealth
    @SanfordCoRDS thanks! Do you know where the table is within the building? Looked out for it yesterday but couldn't see! - Sarah