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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @SanfordCoRDS
    Here's a great #RareDisease #infographic http://t.co/QiEpqjms8U via @globalgenes Share and #careaboutrare

  • @Stefjure
    RT @SanfordCoRDS: Dr. Paul Grossfeld pediatric cardiologist at #UCSD presenting on #raredisease Jacobsen syndrome #SanfordRDD http://t.co/a…

  • @SanfordTimG
    Audio from @DrDavidPearce's interview on @SDPBNews on cancer research in #SiouxFalls: http://t.co/oI8NSWmA6B #SanfordCancer #SanfordResearch

  • @KFS_Freedom
    We R partners w @SanfordCoRDS Our global patient registry! KFS Rare Disease Research here: https://t.co/V0p46zpXBt http://t.co/4PxPro6IkE

  • @prompters
    Implications for rare diseases. MT “@OncTimes_AsstEd: Is tech replacing the art of medicine? http://t.co/yPWP6fXXm1" @SanfordCoRDS

  • @SanfordCoRDS
    Will you be there? #WODC USA 2015 http://t.co/2r1YNqaADv … via @orphanconf

  • @SanfordHealth
    Dr. Chris Fischer (nuclear medicine) & @DrDavidPearce (cancer research) join @karlSDPB on Dakota Midday at noon. http://t.co/PPGIRCwTf7

  • @DrDavidPearce
    Unfolded Protein Response (UPR) a biochemical pathway in all cells in response to stress. Key to many diseases? http://t.co/wl2a3swwXc

  • @DrDavidPearce
    #Biomarkers for #concussion reported http://t.co/7Q7AS2Q5rD from a simple blood test

  • @orphandruganau
    Read #RARE Daily From .@GlobalGenes ▸ stories via @LindseyMesservy @Georgia_Bio @SanfordCoRDS http://t.co/1sBzlhvZIn

  • @SanfordCoRDS
    Don't forget to sign up for #DenimDash2015 https://t.co/24cRjFB0zM

  • @EpigeneticsGuy
    RT @EdinaErds: Favorite Science News is out! http://t.co/HUpF3jULGZ Stories via @EpigeneticsGuy @jwbelmon @DrDavidPearce

  • @EdinaErds
    Favorite Science News is out! http://t.co/HUpF3jULGZ Stories via @EpigeneticsGuy @jwbelmon @DrDavidPearce

  • @DrDavidPearce
    Using #epigenetics to slow disease. Hypermethylation to shut off bad genes http://t.co/QaskfHAq6k #rarediseases