Image Rotator

Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @SanfordCoRDS
    CoRDS is a proud to be affiliated with @RareConnect https://t.co/urn2rgXeOn

  • @SanfordCoRDS
    CoRDS was just consulted, providing resources on rare diseases to ... what for it be presented to THE POPE! @GlobalGenes #CareAboutRare

  • @DrDavidPearce
    New cellular target in diseases of the eye #Microglia http://t.co/bip5T6XvNS #rarediseases #neuroscience

  • @DrDavidPearce
    Promising results from #GeneTherapy for #CysticFibrosis http://t.co/QEGPreayjT #rarediseases

  • @RareConnect
    #MarinescoSjogren Syndrome Registry in partnership with the @SanfordCoRDS. More info: http://t.co/wxAAJYrXYV #raredisease

  • @SanfordCoRDS
    Let's pool our medical data http://t.co/YZ8enOc6kA

  • @SanfordCoRDS
    Join CoRDS in welcoming our newest partner! https://t.co/e5WwejMiyQ @RareConnect @RanomicsInc @GlobalGenes @RareGenomics #CareAboutRare

  • @SanfordCoRDS
    RT @SoftBonesHPP: @SanfordCoRDS @GlobalGenes @RareConnect @MayoClinic http://t.co/by9KMceFgY

  • @DrDavidPearce
    New a good sleep? A specific calcium channel, Cav3.1, is necessary for this http://t.co/Cc11i3PbR4 #GeekyScience