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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @SanfordCoRDS
    Cutting Edge Techniques Yield Potential Treatment for #Genetic #RareDisease(s) #Telomeres @DCOutreachInc https://t.co/LowxeXJQYp

  • @RareAdvocates
    RT @KFS_Freedom: Read: https://t.co/BrNG7yyVFF #CuresNow #OPENact Senate @ResearchAmerica @ECcures @RarePOV @RareAdvocates @RareDiseases @S…

  • @SanfordCoRDS
    CoRDS partner, Sharon Rose @KFS_Freedom , lays out the current #raredisease situation #CuresNow #OPENact #Path2Cures https://t.co/IpYYH5BjL6

  • @SanfordCoRDS
    Help kids with #raredisease by donating blood #kawasakidisease @TheKDF @KawasakiDisCan https://t.co/lB2Nxn5Fw8

  • @CSFinfo
    RT @KFS_Freedom: We r all connected @TheEDSociety @CSFinfo @hesaonlineorg @VasculitisFound @RareAdvocates @GlobalGenes @SanfordCoRDS https…

  • @SanfordCoRDS
    #Charity ball to raise awareness of rare #mitochondrialdisease #raredisease https://t.co/yuJwrFhnFV

  • @KFS_Freedom
    Read: https://t.co/BrNG7yyVFF #CuresNow #OPENact Senate @ResearchAmerica @ECcures @RarePOV @RareAdvocates @RareDiseases @SanfordCoRDS Rare

  • @Natasha_Hot1047
    @DrDavidPearce I am not a fan. 👎

  • @DrDavidPearce
    @Natasha_Hot1047 you are welcome. Marmite is delicious....but only to some.....

  • @SanfordCoRDS
    Social networking for #raredisease #patients #socialmedia @bmj_latest https://t.co/mImNu3FmMm

  • @Natasha_Hot1047
    .@DrDavidPearce Thanks for the basket full of goodies! We are going to try Marmite today for #CracktheCupboard

  • @OmixonBio
    RT @SeqComplete: The latest #RareDiseaseDay! https://t.co/v7OLNDqn94 Thanks to @SanfordCoRDS @TetsuyaIshii @EHDN_GRANTM

  • @SeqComplete
    The latest #RareDiseaseDay! https://t.co/v7OLNDqn94 Thanks to @SanfordCoRDS @TetsuyaIshii @EHDN_GRANTM

  • @kithseer
    RT @KFS_Freedom: We r all connected @TheEDSociety @CSFinfo @hesaonlineorg @VasculitisFound @RareAdvocates @GlobalGenes @SanfordCoRDS https…

  • @SanfordCoRDS
    CA girl battles #raredisease; dad to give kidney but must not work 6 weeks, stunting their finances #faconisyndrome https://t.co/zbAnHc4ZTF