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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @SanfordCoRDS
    Here's a sneak peak of our newest beta of the web portal log-in for CoRDS participants! http://t.co/W4T28ATqdI

  • @CCheroki
    RT @KFS_Freedom: We've partnered with @SanfordCoRDS! Register today! Click here: http://t.co/Ni7SqMF1El #genetics #congenital #rare http:/…

  • @DrDavidPearce
    RT @NIHClinicalCntr: NIH News: NIH study reveals many Americans at risk for alcohol-medication interactions #NIAAA http://t.co/h5U4jahfOX h…

  • @DrDavidPearce
    #Genetic key to #epilepsy revealed http://t.co/XDVPsVtfaL could help target treatments for seizures in many #rarediseases

  • @DrDavidPearce
    Which of the 3.2 billion letters of the #HumanGenome are functionally important? http://t.co/UpnKK8acXe #personalized-medicine

  • @DrDavidPearce
    The science of controlling your dreams http://t.co/3eYKwhWByz #geekyscience

  • @DrDavidPearce
    Most comprehensive #protein map in human tissues http://t.co/2m5urtWe9Q providing insight for targets for #cancer #rarediseases

  • @SanfordCoRDS
    WODC USA 2015 3 months to go – have you registered? http://t.co/2lAGZHFYMa http://t.co/doqR7IWBsX