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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @Palmaciaramitar
    RT @Rose_of_Sharon8: CARE about RARE @KFS_Freedom Awareness Day is THURSDAY #KFSummertimeStroll @TheMightySite @GlobalGenes @SanfordCoRDS h…

  • @KFS_Freedom
    RT @Rose_of_Sharon8: CARE about RARE @KFS_Freedom Awareness Day is THURSDAY #KFSummertimeStroll @TheMightySite @GlobalGenes @SanfordCoRDS h…

  • @GlobalGenes
    RT @Rose_of_Sharon8: CARE about RARE @KFS_Freedom Awareness Day is THURSDAY #KFSummertimeStroll @TheMightySite @GlobalGenes @SanfordCoRDS h…

  • @Rose_of_Sharon8
    CARE about RARE @KFS_Freedom Awareness Day is THURSDAY #KFSummertimeStroll @TheMightySite @GlobalGenes @SanfordCoRDS http://t.co/trPnO5I6Df

  • @DrDavidPearce
    RT @noahs_hope1: $BioMarin nearly triples its est on # of patients w/CLN2 type of #BattenDisease. Investing in #RareDisease is good for pat…

  • @DrDavidPearce
    RT @ORDR: New NHGRI brochure highlights major genomics research areas http://t.co/HYRq1x3Tcy

  • @SanfordCoRDS
    Join the International Stiff Person Syndrome Community ... Share and #CareAboutRare https://t.co/VuXJjC87fH

  • @RareConnect
    @SanfordCoRDS Please share! We're looking for more people to join the 1st Int'l community for #StiffPerson Syndrome http://t.co/8tAP6U4bIT

  • @Austin_Letcher
    Rare isn't so rare afterall ... https://t.co/BF4vH6PEqq

  • @SanfordCoRDS
    Be apart of the new trend #CareAboutRare In 2014, 37% of drug approvals were for treatments of “orphan drugs” http://t.co/1aWPyG2B1y

  • @DrDavidPearce
    Genetic susceptibility to chronic kidney disease reported http://t.co/5bVY0744hM #personalizedmedicine

  • @SanfordCoRDS
    Take a stand for those who cannot stand for themselves. Katie Ladlie is fighting for her rights! @USAgov @GoUSAgov https://t.co/l8gB2z2tTy

  • @DrDavidPearce
    Role for a fatty acid in #mitochondria function http://t.co/dP0cRKBLl1 opens up target for #rarediseases #cancer and more #GeekyScience

  • @DrDavidPearce
    RT @WHO: World on the verge of an effective #Ebola vaccine http://t.co/2WlAbAM6LD http://t.co/QnRbUaAcUi

  • @jess_zeh
    RT @KFS_Freedom: Klippel-Feil Syndrome Awareness Day Aug 6th! Join here: http://t.co/NUK0pMnNS6 #KFStroll @SanfordCoRDS @RareDiseases http:…