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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    Compounds that can modify circadian rhythm https://t.co/2R3vLq9LCt #jetlag could no longer be just for wimps :) #PersonalizedMedicine

  • @DrDavidPearce
    Malnutrition is an immune disorder https://t.co/UsahGpUpyC we have lots to learn on good health from our immune system

  • @cathcoste
    RT @SanfordCoRDS: Festival of Genomics California has now launched!!! Download the brochure here: @FLGenomics https://t.co/1uwaplkjgn https…

  • @SanfordCoRDS
    When a Stranger on the Other Side of the World Led Me to My & My Sons’ Rare Diagnosis #raredisease @neenanizar https://t.co/o5i9350DCj

  • @DrDavidPearce
    #Genetics of the color orange revealed as Carrot #Genome is completed https://t.co/28iq3ypaWo #GeekyScience

  • @SanfordCoRDS
    Well put ... Knowledge is power and #raredisease #bigdata is one of the best forms of #patientadvocacy #freethedata https://t.co/SJoTlNoRWd

  • @immunpulse
    RT @SanfordCoRDS: Festival of Genomics California has now launched!!! Download the brochure here: @FLGenomics https://t.co/1uwaplkjgn https…

  • @FLGenomics
    RT @SanfordCoRDS: Festival of Genomics California has now launched!!! Download the brochure here: @FLGenomics https://t.co/1uwaplkjgn https…

  • @SanfordCoRDS
    Passionate #socialmedia #patientadvocates blogs: The Genomic Catcher in the #RareDisease Rye @Primary_Immune1 https://t.co/KpaoDKq5sQ

  • @SharonLagas
    RT @SanfordCoRDS: Why is co-ordinated care so important in #raredisease? Communication is key for #healthcare https://t.co/m2wAqD2pL7 https…

  • @SanfordCoRDS
    Festival of Genomics California has now launched!!! Download the brochure here: @FLGenomics https://t.co/1uwaplkjgn https://t.co/OZ47Wf0KFU

  • @SanfordCoRDS
    "The #Path2Cures: Putting Patients First” by @HouseCommerce @RepFredUpton #21stCenturyCuresAct #RareDisease https://t.co/R7gt5uCLff

  • @SoftlySmiling
    RT @SanfordCoRDS: #Biotech uses #CRISPR for #raredisease @ksbosley @Editasmed @GRSFoundation https://t.co/3vLS7P0qIE by @adambluestein http…

  • @alanROYGBIV
    RT @SanfordCoRDS: Why is co-ordinated care so important in #raredisease? Communication is key for #healthcare https://t.co/m2wAqD2pL7 https…

  • @SanfordCoRDS
    Why is co-ordinated care so important in #raredisease? Communication is key for #healthcare https://t.co/m2wAqD2pL7 https://t.co/OFBOpvo4DB