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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    Better understanding of #MacularDegeneration https://t.co/QrWIJYHNv7 providing drug targets

  • @DrDavidPearce
    #gene drug interactions a key to #personalizedmedicine https://t.co/QVfFCbqeBz & #cancer therapies #BigData

  • @DrDavidPearce
    Choroid Plexus the key to controlling adult #StemCells in the #Brain https://t.co/jwrTm5zL0R #Neuroscience #Cures

  • @SanfordCoRDS
    Parents Should Be Closely Involved In Observing Sick Children's Conditions, NHS Urges Doctors https://t.co/eXBdLtyD0X

  • @Cornervizion
    RT @Rose_of_Sharon8: Klippel-Feil Syndrome Awareness Day! Aug 6 @RareDR @GlobalGenes @SanfordCoRDS @RareAdvocates follow me @ #periscope ht…

  • @mmmichelle88
    RT @SanfordHealth: Excited to have our own @DrDavidPearce representing @TEDxFargo focused on #BattenDisease #research that could change liv…

  • @KFS_Freedom
    RT @Rose_of_Sharon8: Klippel-Feil Syndrome Awareness Day! Aug 6 @RareDR @GlobalGenes @SanfordCoRDS @RareAdvocates follow me @ #periscope ht…

  • @winsol67
    RT @Rose_of_Sharon8: Klippel-Feil Syndrome Awareness Day! Aug 6 @RareDR @GlobalGenes @SanfordCoRDS @RareAdvocates follow me @ #periscope ht…

  • @SanfordCoRDS
    RT @Rose_of_Sharon8: Klippel-Feil Syndrome Awareness Day! Aug 6 @RareDR @GlobalGenes @SanfordCoRDS @RareAdvocates follow me @ #periscope ht…

  • @winsol67
    RT @KFS_Freedom: 2 weeks 2 Klippel-Feil Syndrome Awareness Day! Aug 6 @RareDiseases @RareDR @GlobalGenes @SanfordCoRDS @RareAdvocates https…

  • @RareAdvocates
    RT @KFS_Freedom: 2 weeks 2 Klippel-Feil Syndrome Awareness Day! Aug 6 @RareDiseases @RareDR @GlobalGenes @SanfordCoRDS @RareAdvocates https…

  • @Rose_of_Sharon8
    Klippel-Feil Syndrome Awareness Day! Aug 6 @RareDR @GlobalGenes @SanfordCoRDS @RareAdvocates follow me @ #periscope https://t.co/ZWVzu95bvk

  • @KFS_Freedom
    2 weeks 2 Klippel-Feil Syndrome Awareness Day! Aug 6 @RareDiseases @RareDR @GlobalGenes @SanfordCoRDS @RareAdvocates https://t.co/UC90x0akMV

  • @DrDavidPearce
    RT @nanthealth: .@US_FDA drafts guidances to establish standards for #nextgensequencing tests for #precisionmedicine https://t.co/k92XUC0vN…

  • @SanfordCoRDS
    A young #doctor fights to cure his own deadly #raredisease #castlemandisease @CastlemanDisea @sciencemagazine https://t.co/oTbGmkDscC