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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @SanfordCoRDS
    RT @RareDiseases: RETWEET. The #raredisease community MUST ACT NOW & urge Senators to #VoteNO. https://t.co/gcp9zvJlD5

  • @KFS_Freedom
    RT @Rose_of_Sharon8: Hit 1200 +1500 at @KFS_Freedom today! RARE DISEASE patient impact! @TwitterMoments @GlobalGenes @SanfordCoRDS @RareAdv…

  • @DrDavidPearce
    RT @NIHDirector: Mismatch repair defects predict which #cancer patients will benefit from #immunotherapy drug. Learn more! #NIH https://t.c…

  • @Rose_of_Sharon8
    Hit 1200 +1500 at @KFS_Freedom today! RARE DISEASE patient impact! @TwitterMoments @GlobalGenes @SanfordCoRDS @RareAdvocates @RareDiseases

  • @SanfordCoRDS
    RT @RareDiseases: What is a #raredisease? Who is affected in the U.S.? Retweet to raise awareness. https://t.co/Km4DUP3xz7