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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    RT @richadcock: Protein Project Could Help Expose Cancer’s Causes http://t.co/cZXatRaNZK

  • @DrDavidPearce
    RT @SeattleMamaDoc: Overheard just now, "What's a phone book?" --7 year-old. It's #mindblowing parenting in 2014

  • @Kegottsleben
    RT @MPSSociety: MT @SanfordCoRDS: Inspiring story of our very own @Kegottsleben with @CD_SouthDakota #BioMarin #MPS @orphandruganau http://…

  • @MPSSociety
    MT @SanfordCoRDS: Inspiring story of our very own @Kegottsleben with @CD_SouthDakota #BioMarin #MPS @orphandruganau http://t.co/ZV4loTiVOJ

  • @SanfordCoRDS
    Six days until the launch of our IWSA online enrollment platform for WAGR Syndrome! Please share! @DiseaseSymptom @CheckOrphan @RareDayUS

  • @Kegottsleben
    @SanfordCoRDS thanks for the MT! It was an #honor to have been asked to be #interviewed! #MPS #BioMarin #RareDisease

  • @SanfordCoRDS
    Inspiring story of our very own @Kegottsleben with @CD_SouthDakota #BioMarin #MPS @MPSSociety @orphandruganau http://t.co/cMx6vBpRbM

  • @LButlerRocks
    New #treatment for #Marfan syndrome shows promise. http://t.co/Bi21cKyYEC … #rarediseases via @DrDavidPearce

  • @Kegottsleben
    RT @GlobalGenes: @SanfordCoRDS @GlobalGenes Announces Medical & Scientific Advisory Board—Adds New Members to BOD http://t.co/A31A9WubGa

  • @GlobalGenes
    @SanfordCoRDS @GlobalGenes Announces Medical & Scientific Advisory Board—Adds New Members to BOD http://t.co/A31A9WubGa

  • @RareDiseaseUntd
    RT @11pdeletion: @SanfordCoRDS @CheckOrphan @SpecialNeedPlan @RareDiseaseUntd @RareDiseases @WilmsKids @WilmsTumorr THANK YOU! We are excit…

  • @11pdeletion
    @SanfordCoRDS @CheckOrphan @SpecialNeedPlan @RareDiseaseUntd @RareDiseases @WilmsKids @WilmsTumorr THANK YOU! We are excited to get started!

  • @SanfordCoRDS
    1 week until CoRDS-IWSA online portal! @11pdeletion @CheckOrphan @SpecialNeedPlan @RareDiseaseUntd @RareDiseases @WilmsKids @WilmsTumorr

  • @PharmEdGuy
    #Genes is here! http://t.co/Jd3B3fTxKR Stories via @DrDavidPearce @imajin2moro @forensicvic

  • @DrDavidPearce
    HIV drugs show promise treating common eye disease, macular degeneration, http://t.co/rfbYrgR2P3