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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    HIV drugs show promise treating common eye disease, macular degeneration, http://t.co/rfbYrgR2P3

  • @DrDavidPearce
    Tapeworm found in mans brain! http://t.co/PxnZHORfjA #genome sequenced to understand this rare parasite #GeekyScience

  • @DrDavidPearce
    RT @SanfordPROMISE: Using mice to #research human health, disease, and genetics - http://t.co/fc1nE0FYX0

  • @alanROYGBIV
    @findacure_fdn @TonyKHall @SanfordCoRDS @AKUSociety Duncan Batty + Nick + random #Spaceman #wodc2014 http://t.co/FwNNNKey7g

  • @zyhebulybunope
    RT @alanROYGBIV: @SanfordCoRDS Putting your  into Twitter with @alanROYGBIV at @doctors20 @health20Paris #do

  • @BTDLLC
    RT @achalasiaaware: My best RTs this week came from: @SanfordCoRDS @SquareyGame @BTDLLC #thankSAll via http://t.co/hnI3DwHwjn

  • @achalasiaaware
    My best RTs this week came from: @SanfordCoRDS @SquareyGame @BTDLLC #thankSAll via http://t.co/hnI3DwHwjn

  • @DrDavidPearce
    RT @KELOHealthBeat: Sanford Named Ebola Treatment Center: The Sanford USD Medical Center has been designated as South Dakota's Ebo... http:…

  • @DrDavidPearce
    RT @SanfordCoRDS: Dr. Jane Burns gave an update on #KawasakiDisease at the 7th Annual Denny #Sanford #Pediatric Symposium http://t.co/a3le3…

  • @SanfordCoRDS
    Dr. Jane Burns gave an update on #KawasakiDisease at the 7th Annual Denny #Sanford #Pediatric Symposium http://t.co/a3le3pWv6n

  • @SanfordCoRDS
    RT @achalasiaaware: The Achalasia Awareness Daily is out! http://t.co/by8xz2jzsG Stories via @HHS_Health

  • @SanfordCoRDS
    RT @SeqComplete: #RareDiseaseDay is out! http://t.co/t9tpbXttq7 Stories via @andra_LU @RareDxResearch @SanfordCoRDS

  • @SanfordCoRDS
    RT @RareDR: My best RTs this week came from: @SamBrownInc @SanfordCoRDS @GRDO_IRELAND @medicalESP @nma08244 #thankSAll via http://t.co/zIzv…

  • @SanfordCoRDS
    RT @nma08244: @RareDR @SamBrownInc @SanfordCoRDS @GRDO_IRELAND @medicalESP You are very welcome! Always a pleasure to read what you put ou…

  • @SanfordCoRDS
    RT @orphandruganau: Read #RareDiseaseDay From @SeqComplete ▸ today's top stories via @RareDxResearch @SanfordCoRDS @keeganj http://t.co/dO…