Image Rotator

Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @Rose_of_Sharon8
    RT @SanfordBenF: Huge thanks to @mikeporath, CEO of @TheMightySite, for presenting at @SanfordCoRDS Rare Disease Summit here at @SanfordRes…

  • @KFS_Freedom
    RT @SanfordResearch: So great to have this group of young, budding scientists at @SanfordCoRDS Great Plains Rare Disease Summit! https://t.…

  • @KFS_Freedom
    RT @SanfordCoRDS: Don't forget to join us live for the 2nd Annual Great Plains #RareDisease Summit #SanfordRare Link to join live: https:/…

  • @KFS_Freedom
    RT @SanfordCoRDS: The Patient Resource Panel at the 2nd Annual Great Plains #RareDisease Summit uses the expertise from Brenda Bernard at t…

  • @AndyAUCD
    RT @SanfordResearch: So great to have this group of young, budding scientists at @SanfordCoRDS Great Plains Rare Disease Summit! https://t.…

  • @AndyAUCD
    RT @SanfordCoRDS: Our researcher panel kicks off with Dr. Davis-Keppen, @DrJWeimer and @DrDavidPearce answering questions from #raredisease…

  • @kdrew05
    RT @SanfordCoRDS: Erin Royer, MS, LCGC speakers to the benefits and services a genetic counselor can offer #raredisease #patient #SanfordRa…

  • @Kegottsleben
    @SanfordCoRDS You are most welcome! Great two days! Keep up the great work!

  • @SanfordBenF
    RT @Kegottsleben: Great ending panel discussion with #Sanford researchers! Looking forward to next years Annual Great Plains #RareDisease S…

  • @harrisburg_hosa
    RT @SDHOSA: HOSA Rare Disease Display in full effect! #sdhosa @SDHOSA @NationalHOSA @SanfordCoRDS https://t.co/Qt90pSyKEI

  • @CD_SouthDakota
    RT @SanfordCoRDS: Our researcher panel kicks off with Dr. Davis-Keppen, @DrJWeimer and @DrDavidPearce answering questions from #raredisease…

  • @SanfordCoRDS
    Thanks Kendra! @Kegottsleben https://t.co/k47BI1LQKe

  • @Kegottsleben
    Great ending panel discussion with #Sanford researchers! Looking forward to next years Annual Great Plains… https://t.co/75t9YjE3te

  • @militzfrielink
    RT @Kegottsleben: Another thrilling day, as I’m attending the 2nd Annual Great Plains #RareDisease Summit hosted by @SanfordCoRDS. The firs…

  • @SanfordBenF
    RT @SanfordCoRDS: Our researcher panel kicks off with Dr. Davis-Keppen, @DrJWeimer and @DrDavidPearce answering questions from #raredisease…