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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @collabchem
    RT @JFCConsultants: @Kegottsleben @PROS_Foundation @RarePOV @PPALSorg @SanfordCoRDS @SanfordResearch @MPSSociety @UpliftingAth @KyleABryant…

  • @JFCConsultants
    @Kegottsleben @PROS_Foundation @RarePOV @PPALSorg @SanfordCoRDS @SanfordResearch @MPSSociety @UpliftingAth… https://t.co/d77ypov7T6

  • @Kegottsleben
    @PROS_Foundation @RarePOV @PPALSorg @SanfordCoRDS @SanfordResearch @MPSSociety @UpliftingAth @KyleABryant… https://t.co/sySCvLYzbB

  • @PROS_Foundation
    @RarePOV @Kegottsleben @PPALSorg @SanfordCoRDS @SanfordResearch @MPSSociety @UpliftingAth @KyleABryant… https://t.co/q3QubVNEir

  • @MyositisSupport
    RT @Kegottsleben: Listening to @Srotberg15 share his story of living beyond a diagnosis. #RareDisease #RareDiseaseAdvocate #RareDiseasePat…

  • @SanfordBenF
    RT @Kegottsleben: Spending the day at @SanfordResearch attending @SanfordCoRDS’ Great Plains Rare Disease Summit. So grateful to have #Sanf…

  • @esteckler2
    @80sLeftover I have seen it occur in multiple ‘patient advocacy’ orgs and it is disheartening. I was speaking of… https://t.co/GWYiioKkYz

  • @esteckler2
    @DrJWeimer @SanfordCoRDS I don’t understand how @SanfordCoRDS wants to engage with patients w rare diseases yet… https://t.co/WMIAVuupwZ

  • @JFCConsultants
    @Kegottsleben @RarePOV @PPALSorg @SanfordCoRDS @SanfordResearch @MPSSociety @UpliftingAth @KyleABryant… https://t.co/XNctm56jt0

  • @Kegottsleben
    @collabchem @allie_hutch @SanfordResearch @SanfordCoRDS It was nice meeting with you too! I had looked for you afte… https://t.co/xONDu8soUj

  • @collabchem
    @Kegottsleben @allie_hutch @SanfordResearch @SanfordCoRDS Great to meet you Kendra. Hope to catch up at a conferenc… https://t.co/AZ7rVZN6zA

  • @Kegottsleben
    @RarePOV @PPALSorg @SanfordCoRDS @SanfordResearch @MPSSociety @UpliftingAth @KyleABryant @EveryLifeOrg… https://t.co/6s6757d0UD

  • @RarePOV
    @Kegottsleben @PPALSorg @SanfordCoRDS @SanfordResearch @MPSSociety @UpliftingAth @KyleABryant @EveryLifeOrg… https://t.co/1kahmasAgJ

  • @collabchem
    RT @Kegottsleben: Enjoying a wonderful presentation by @allie_hutch on genetic counseling! #RareDisease #SanfordCoRDS #GeneticCounselor #C…

  • @allie_hutch
    @Kegottsleben @SanfordResearch @SanfordCoRDS Thanks, @Kegottsleben It was my pleasure to share my experience and ge… https://t.co/VBhWRrQeBI