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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    RT @SanfordCoRDS: Join CoRDS for this one-of-a-kind, virtual, health fair focused on #raredisease #patients - on September 28th, we will be…

  • @Kegottsleben
    RT @SanfordCoRDS: Join CoRDS for this one-of-a-kind, virtual, health fair focused on #raredisease #patients - on September 28th, we will be…

  • @Candice35501
    RT @SanfordCoRDS: Join CoRDS for this one-of-a-kind, virtual, health fair focused on #raredisease #patients - on September 28th, we will be…

  • @SanfordCoRDS
    Join CoRDS for this one-of-a-kind, virtual, health fair focused on #raredisease #patients - on September 28th, we w… https://t.co/Y4VHEY54Fd

  • @FiredUpforALGS
    RT @SanfordHealth: "If you believe in us, we'll believe in you." - @shamy27 https://t.co/ffgURmdN4r #UnitetoCure #RareDisease #alagillesynd…

  • @Srotberg15
    RT @JFCConsultants: #raredisease Check out a free webinar on 8/22/18 at 2pmEST hosted by the Society for Participatory Medicine. A good di…

  • @ECDGA
    RT @JFCConsultants: #raredisease Check out a free webinar on 8/22/18 at 2pmEST hosted by the Society for Participatory Medicine. A good di…

  • @JFCConsultants
    #raredisease Check out a free webinar on 8/22/18 at 2pmEST hosted by the Society for Participatory Medicine. A goo… https://t.co/NGp0AeLjZi

  • @CdLSFoundation
    RT @SanfordCoRDS: CoRDS and Imagenetics are teaming up to present Disorder: The #RareDisease Film Festival. Join us on September 13th at th…

  • @fmedinacunha
    RT @SanfordCoRDS: CoRDS and Imagenetics are teaming up to present Disorder: The #RareDisease Film Festival. Join us on September 13th at th…

  • @ECDGA
    RT @SanfordCoRDS: CoRDS and Imagenetics are teaming up to present Disorder: The #RareDisease Film Festival. Join us on September 13th at th…

  • @SanfordResearch
    RT @SanfordCoRDS: CoRDS and Imagenetics are teaming up to present Disorder: The #RareDisease Film Festival. Join us on September 13th at th…

  • @Abrams_Nation
    RT JFCConsultants: What a fabulous idea! Attended the inaugural #RareDiseaseFilmFestival in 2017 which was amazing.… https://t.co/uSk61kWva6

  • @EparentConnect
    RT @JFCConsultants: What a fabulous idea! Attended the inaugural #RareDiseaseFilmFestival in 2017 which was amazing. Thrilled to see @Sanfo…

  • @JFCConsultants
    What a fabulous idea! Attended the inaugural #RareDiseaseFilmFestival in 2017 which was amazing. Thrilled to see… https://t.co/bH8LgArQGi