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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @GlobalGenes
    RT @JFCConsultants: @JFCConsultants @PPALSorg was happy to share an exhibit table with @SanfordCoRDS at @GlobalGenes Patient Summit! Wonder…

  • @JFCConsultants
    @JFCConsultants @PPALSorg was happy to share an exhibit table with @SanfordCoRDS at @GlobalGenes Patient Summit! Wonderful collaboration!!

  • @texanblue24
    RT @SanfordCoRDS: CoRDS is the advocacy group for all #raredisease #patients & those without a support group, because rare is common for 30…

  • @Rose_of_Sharon8
    RT @KFS_Freedom: We're THRILLED 2 Announce a @SanfordCords NEW KFS Patient Registry Survey! > https://t.co/urgvqI1oXc #data #genetics #rar…

  • @N0oLo
    RT @SanfordCoRDS: CoRDS is the advocacy group for all #raredisease #patients & those without a support group, because rare is common for 30…

  • @DrDavidPearce
    RT @argusleader: National @SanfordHealth registry is helping connect kids with rare diseases to researchers trying to find cures. https://…

  • @SanfordCoRDS
    RT @argusleader: National @SanfordHealth registry is helping connect kids with rare diseases to researchers trying to find cures. https://…

  • @GlobalGenes
    RT @SanfordBenF: Thank you @GlobalGenes! Fantastic summit and forum! @SanfordResearch and @SanfordCoRDS will see you next year! #2017GGsumm…

  • @SanfordBenF
    Thank you @GlobalGenes! Fantastic summit and forum! @SanfordResearch and @SanfordCoRDS will see you next year! #2017GGsummit #2017GGforum

  • @KFS_Freedom
    We're THRILLED 2 Announce a @SanfordCords NEW KFS Patient Registry Survey! > https://t.co/urgvqI1oXc #data… https://t.co/EplsTgIeMs

  • @SanfordResearch
    RT @SanfordBenF: Hey everyone at @GlobalGenes annual summit: come by the @SanfordCoRDS booth to speak with me and @DrJWeimer about CoRDS! #…

  • @runnerJPK
    RT @SanfordBenF: "We need to evolve to a place where registries are shared resources." @amicusrx1 @SanfordCoRDS does this every day -for fr…

  • @SanfordBenF
    "We need to evolve to a place where registries are shared resources." @amicusrx1 @SanfordCoRDS does this every day -for free! #2017GGsummit

  • @DrJWeimer
    RT @SanfordResearch: Interested in learning more about @SanfordCoRDS, a registry for #rarediseases Read the article below! @DrDavidPearce @…

  • @DrAllisonW
    RT @SanfordResearch: Interested in learning more about @SanfordCoRDS, a registry for #rarediseases Read the article below! @DrDavidPearce @…