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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    #Genetic test for prediction of #Cancer reoccurrence https://t.co/MfJMklisHZ #PrecisionMedicine

  • @nerdmomrambles
    Progress!!!! https://t.co/ofouUceBkV

  • @DrDavidPearce
    The 'flesh-eating' #genes of streptococcus reported https://t.co/tAVVmwbudF #genetics

  • @DrDavidPearce
    Possible #GeneTherapy for #Usher syndrome being developed https://t.co/yGA3VS25YW #RareDiseases

  • @DrDavidPearce
    Possible #GeneTherapy being developed for #MultipleSclerosis #MS https://t.co/Tmws6JoO2C #Neuroscience

  • @OliviaSofiaGram
    @SanfordCoRDS @N0oLo So this is one of the two main medical providers near me ... gotta check this research area out!

  • @ASGCGP
    RT @_mai_ran: Thank you @SanfordCoRDS for speaking with @ASGCGP 2nd years. A great resource for our patients!

  • @_mai_ran
    Thank you @SanfordCoRDS for speaking with @ASGCGP 2nd years. A great resource for our patients!

  • @Rose_of_Sharon8
    Thanks @ORDR 4 supporting first hand patient med experience w Rare Disease @KFS_Freedom @SanfordCoRDS @RareDiseases… https://t.co/0vhjPrDDRJ

  • @harmonize4hope
    @KFS_Freedom @SanfordCoRDS @GlobalGenes Love you guys! 💜🎶

  • @SanfordCoRDS
    RT @LittleLobbyists: This is a must watch. Thank you, @jimmykimmel. Thank you thank you thank you for speaking up to protect our kids. http…

  • @KFS_Freedom
    RT @SanfordCoRDS: CoRDS is the advocacy group for all #raredisease #patients & those without a support group, because rare is common for 30…

  • @KFS_Freedom
    Missed #2017GGsummit but we're unstoppable 4 #RareDisease #research #data #patients #patients c our pinned post… https://t.co/2AGaAhG80x

  • @GlobalGenes
    RT @JFCConsultants: @JFCConsultants @PPALSorg was happy to share an exhibit table with @SanfordCoRDS at @GlobalGenes Patient Summit! Wonder…

  • @JFCConsultants
    @JFCConsultants @PPALSorg was happy to share an exhibit table with @SanfordCoRDS at @GlobalGenes Patient Summit! Wonderful collaboration!!