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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @Karen889510
    RT @Rose_of_Sharon8: Annual Klippel-Feil Syndrome #KFStroll walk Patients Family Friends Family meet GLOBAL > https://t.co/m63qVWoaAu @Glob…

  • @SanfordCoRDS
    RT @Rose_of_Sharon8: Annual Klippel-Feil Syndrome #KFStroll walk Patients Family Friends Family meet GLOBAL > https://t.co/m63qVWoaAu @Glob…

  • @GlobalGenes
    RT @Rose_of_Sharon8: Annual Klippel-Feil Syndrome #KFStroll walk Patients Family Friends Family meet GLOBAL > https://t.co/m63qVWoaAu @Glob…

  • @Rose_of_Sharon8
    Annual Klippel-Feil Syndrome #KFStroll walk Patients Family Friends Family meet GLOBAL > https://t.co/m63qVWoaAu… https://t.co/urpWBDfMoh

  • @DrDavidPearce
    RT @NatureGenet: Rare coding variants implicate microglial-mediated innate immunity in Alzheimer's disease (Sims et al.) https://t.co/n6vx6…

  • @DrDavidPearce
    RT @sciencemagazine: This weekend's a great time to get ready to #DanceYourPhD. Join the contest by September 29: https://t.co/e5EfE3aA53 h…

  • @DrDavidPearce
    RT @DrAllisonW: A decade on, vaccine has halved cervical cancer rate https://t.co/KdEfTMmGYj

  • @DrDavidPearce
    Changes in #DNA methylation may provide a signature risk for #BreastCancer https://t.co/aUiHGcIF9Y #Epigenetics

  • @DrDavidPearce
    A better understanding of #Radiation therapy will lead to better outcomes in #Cancer https://t.co/BXnD1W68lq

  • @DrDavidPearce
    #Biomarker for #Epilepsy could lead to targeted treatment of #Seizures https://t.co/wd8UAKeVWL #RareDiseases #Neuroscience

  • @DrDavidPearce
    RT @eurordis: 12th Annual International Conference on #Rarediseases and #OrphanDrugs will be held in China, September 7-10 https://t.co/W6b…

  • @SanfordCoRDS
    RT @SGottliebFDA: In June FDA launch plan to eliminate 200 application orphan drug designation backlog. Our great team is 60% to goal https…

  • @DrDavidPearce
    RT @SGottliebFDA: In June FDA launch plan to eliminate 200 application orphan drug designation backlog. Our great team is 60% to goal https…

  • @DrDavidPearce
    High Intensity Sequencing of circulating #DNA improves #Cancer patients chance of treatment https://t.co/9JEpm7FIQ6 #BigData

  • @DrDavidPearce
    Improved #GeneTherapy on its way. https://t.co/Q4Figz2kW3 stops #Immune system recognizing #AAV #RareDiseases