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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @RareAdvocacy
    RT @PROS_Foundation: @SanfordCoRDS ​ has an excellent webinar coming up and a great opportunity to learn from these knowledgeable advocates…

  • @KFS_Freedom
    RT @SanfordCoRDS: Only two more days to register for the CoRDS Workshop Webinar! We are up to 170 people registered. Please share and help…

  • @HypersomniaNews
    RT @SanfordCoRDS: Only two more days to register for the CoRDS Workshop Webinar! We are up to 170 people registered. Please share and help…

  • @Mark2Cure
    Happening tomorrow so register soon: https://t.co/MEPa9t9eHB

  • @DrPas84Ele
    RT @SanfordCoRDS: Only two more days to register for the CoRDS Workshop Webinar! We are up to 170 people registered. Please share and help…

  • @ataxiaandme
    RT @SanfordCoRDS: Only two more days to register for the CoRDS Workshop Webinar! We are up to 170 people registered. Please share and help…

  • @SanfordCoRDS
    Only two more days to register for the CoRDS Workshop Webinar! We are up to 170 people registered. Please share and… https://t.co/vVCaxwW0Qt

  • @SanfordCoRDS
    @MalanSyndrome We're happy to help!

  • @MalanSyndrome
    🌻thank you @SanfordCoRDS for partnering with us to create an international patient registry for Malan syndrome. We… https://t.co/VJ0QtwTILd

  • @GlobalGenes
    RT @PROS_Foundation: @SanfordCoRDS ​ has an excellent webinar coming up and a great opportunity to learn from these knowledgeable advocates…

  • @PROS_Foundation
    @SanfordCoRDS ​ has an excellent webinar coming up and a great opportunity to learn from these knowledgeable advoca… https://t.co/0p9iashO1S

  • @PPALSorg
    RT @JFCConsultants: #RareDisease @EparentConnect @PPALSorg @teaminspire Looking forward to this webinar! Be sure to tune in! https://t.co/P…

  • @DrDavidPearce
    RT @GlobalGenes: If you’re in San Francisco this week, keep an eye out for this bus! We’re raising awareness of #RareDisease & helping to k…

  • @DrDavidPearce
    An electical chip functioning as a #Brain pacemaker to treat neurological disorders such as #Parkinsons #Epilepsy ?… https://t.co/2hJxjAgdzW

  • @DrDavidPearce
    #RNA in an inhaler https://t.co/umXpam1Bin Has huge potential for delivery of therapy for Lung disease #CFTR #rarediseases #Cancer