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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @SanfordCoRDS
    .@EinsteinMed & @MontefioreNYC Teaming Up to Tackle Childhood #RareDisease #NiemannPick @NPCFund https://t.co/MRyA6Y9Egl

  • @SanfordCoRDS
    Finding Common Ground Around #RareDisease @NCHealthNews @UNC_SOM https://t.co/tfzSWeWUki

  • @SanfordCoRDS
    RT @RareGenomics: Nina Gorbach family therapist and fine artist steps out of the #RareDisease Shadows via @sonomamag https://t.co/kwiXVsS7Zs

  • @SanfordCoRDS
    Danville Teen with #RareDisease Remains Hopeful #SjogrenSyndrome @SjogrensOrg @SjogrensCa https://t.co/5phzYURR3K

  • @SanfordCoRDS
    Baby born with #kidneydisorder #raredisease #PKD #Polycystic #KidneyDisease @PKDFoundation @PKDCharity https://t.co/vJBeKDrrMY

  • @tatterededge
    @SanfordCoRDS @Bionure the #nmo community loves Maureen!! 💚

  • @SanfordCoRDS
    Maureen Mealy: Raising Awareness for a #RareDisease and Moving #Treatment Forward #Neuromyelitisoptica @Bionure https://t.co/tj0ii1vEqP

  • @curetheprocess
    RT @FDysplasia: #FDWarrior Nina Gorbach speaks candidly abt living with #fibrousdysplasia & joys of volunteering w/ @curetheprocess https:/…

  • @SuzieMay08
    RT @FDysplasia: #FDWarrior Nina Gorbach speaks candidly abt living with #fibrousdysplasia & joys of volunteering w/ @curetheprocess https:/…

  • @FDysplasia
    #FDWarrior Nina Gorbach speaks candidly abt living with #fibrousdysplasia & joys of volunteering w/ @curetheprocess https://t.co/FOquFZRwzZ

  • @SanfordCoRDS
    Nina Gorbach steps out of the #raredisease shadows #polyostoticfibrousdysplasia @FDysplasia https://t.co/MWajZpgH3f

  • @SanfordCoRDS
    RT @CheckOrphan: #Agilis https://t.co/WshfrnNXzm First #GeneTherapy Company Selected for #NIH Therapeutics for Neglected & #RareDisease Pr…

  • @NCSBS
    RT @SanfordCoRDS: Easily preventable #shakenbabysyndrome @PURPLEcrying @NCSBS @SBSyndrome @tiffverzal https://t.co/78SwbxcePq

  • @SanfordCoRDS
    #raredisease prognosis depends on its extent #Langerhanscell #histiocytosis #immunesystem https://t.co/GiUhHFK7eS https://t.co/3iBmtVdOqY

  • @MakingCharity
    RT @DTMfoundation: Heartbreaking and beautiful story about how the internet can help. #raredisease #giveback https://t.co/aWx3nT2b2R