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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @SanfordCoRDS
    #Genetic #discrimination #legislation makes its way to House of Commons @raredisorders @CIHR_IG https://t.co/bkUhtJobq5

  • @SanfordCoRDS
    Clinic to help people with EDS, other #rarediseases — @CheckOrphan https://t.co/DMlrtG6af8

  • @SanfordCoRDS
    Man battles #raredisease to graduate #vesiculobullous #autoimmunedisease https://t.co/DIL1ycmrlL via @sharethis

  • @americanmedchem
    RT @JoannaSapida: @SanfordCoRDS @americanmedchem May11: Professional #PatientAdvocates in #LifeSciences (PPALS) Conference #PPALSConf https…

  • @SanfordCoRDS
    Pfizer #RareDisease Unit call for Collaborative #DrugDiscovery #Research Proposals | NHS Research Scotland https://t.co/yuUqdLBnTU

  • @SanfordCoRDS
    We Have a #RareDisease: We Are Losing Intuition, a theatrical/artistic approach to spread awareness https://t.co/ucGXY8mcUl @TheNordicPage

  • @SanfordCoRDS
    RT @RarePOV: Will be watching Targeted Cures: A Policy Discussion on Treating Patients with #RareDiseases on May 11 https://t.co/fYliEpCLyM…

  • @Med_Speaks
    @SanfordCoRDS @colleen_young Register now! #PPALSConf: #PatientAdvocacy w/in #biotech & #pharma for #RareDiseases. https://t.co/l753GHZkhT

  • @JoannaSapida
    @SanfordCoRDS @colleen_young Register now! #PPALSConf: #PatientAdvocacy w/in #biotech & #pharma for #RareDiseases. https://t.co/Q2BDkba6ZY

  • @SanfordCoRDS
    Young woman fears mystery illness which killed sisters could claim her #raredisease @TaySachs https://t.co/nCtP43WijU @MailOnline

  • @alanROYGBIV
    RT @SanfordCoRDS: Well put @DrDavidPearce! Knowledge is Power & Collaboration is Key! #RareDisease #Research @GlobalGenes @Med_Speaks http…

  • @Mark2Cure
    RT @SanfordCoRDS: Rare Mom's advice to others that have discovered that a #raredisease will change their life RE https://t.co/FRTUAUonv6

  • @SanfordCoRDS
    What Parents Need to Know About #Meningitis #RareDisease @MeningitisNow@M_R_F https://t.co/Tva0LB2pfm via @usnews

  • @SanfordCoRDS
    Homo Sapiens 2.0? We need a species-wide conversation about the future of human #genetic enhancement https://t.co/S3I5B7WsgR @techcrunch

  • @SanfordCoRDS
    Calgary boy needs $400K drug to treat rare form of #musculardystrophy #raredisease https://t.co/H7g71xqyKg