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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @Hannahsfight1
    @SanfordCoRDS Pls help save Baby Hannah's life.She needs life saving surgery Pls Donate/RT http://t.co/VPd7qPUo6N Anything helps

  • @medicalESP
    RT @nma08244: @RareDR @SamBrownInc @SanfordCoRDS @GRDO_IRELAND @medicalESP You are very welcome! Always a pleasure to read what you put ou…

  • @EpiExperts
    Oops, on that age-related diffrtl DNA methyln paper, h/t to @DrDavidPearce http://t.co/Xv8G9L1bVR #epigenetics -CW

  • @DrDavidPearce
    #DNA methylation changes with aging http://t.co/4JeMjkrmSR further defining what will be #personalizedmedicine #epigenetics

  • @DrDavidPearce
    New treatment for Marfan syndrome shows promise http://t.co/1Ssf64LE0g #rarediseases #SanfordCoRDS

  • @nma08244
    @RareDR @SamBrownInc @SanfordCoRDS @GRDO_IRELAND @medicalESP You are very welcome! Always a pleasure to read what you put out.

  • @nma08244
    RT @RareDR: My best RTs this week came from: @SamBrownInc @SanfordCoRDS @GRDO_IRELAND @medicalESP @nma08244 #thankSAll via http://t.co/zIzv…

  • @alanROYGBIV
    RT @RareDR: My best RTs this week came from: @SamBrownInc @SanfordCoRDS @GRDO_IRELAND @medicalESP @nma08244 #thankSAll via http://t.co/zIzv…

  • @medicalESP
    RT @RareDR: My best RTs this week came from: @SamBrownInc @SanfordCoRDS @GRDO_IRELAND @medicalESP @nma08244 #thankSAll via http://t.co/zIzv…

  • @RareDR
    My best RTs this week came from: @SamBrownInc @SanfordCoRDS @GRDO_IRELAND @medicalESP @nma08244 #thankSAll via http://t.co/zIzvZBxTrX

  • @DrDavidPearce
    80 million bacteria in a single kiss! http://t.co/BjwmHoldhO #GeekyScience 9 kisses a day gives you same oral #microbiome as your partner

  • @SeqComplete
    #RareDiseaseDay is out! http://t.co/t9tpbXttq7 Stories via @andra_LU @RareDxResearch @SanfordCoRDS

  • @SanfordCoRDS
    RT @ATCure: High school senior who has ataxia-telangiectasia crowned homecoming queen in Illinois http://t.co/DspUL4x2q9

  • @SanfordCoRDS
    @TEDTalks Gene discovered by crowd funding http://t.co/zLi3qbArTR @RareGenomics can show you how http://t.co/Yxmt0jOpbM #genomemapping #rare

  • @SanfordCoRDS
    RT @OrphanConf: Congratulations to Yann Le Camm from @eurordis on winning the 2014 ROAR Leadership Award #WODC2014 #orphandrug http://t.co…