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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @SanfordCoRDS
    WODC USA 2015 3 months to go – have you registered? http://t.co/2lAGZHFYMa http://t.co/doqR7IWBsX

  • @DrDavidPearce
    Encouraging data from Biomarin for CLN2 enzyme replacement trial for late-infantile #BattenDisease http://t.co/GT9cX0WaHb #RareDiseases

  • @fragilexsyndrom
    The Fragile X Syndrome Daily is out! http://t.co/ZJtdk036N0 Stories via @DrDavidPearce @gwallut @SophieColomina

  • @DrDavidPearce
    #genetics adding greater understanding of #FragileX syndrome http://t.co/eIzcmb5Ytk #rarediseases

  • @DrDavidPearce
    RT @RareGenomics: Electronic Skin Patch With Memory and Drug Delivery Capability Could Treat #Parkinsons http://t.co/98khS87av7 http://t.c…

  • @SanfordCoRDS
    CoRDS is a proud partner of IWSA! Check out what CoRDS/IWSA is all about. http://t.co/F8bRzIiNo2

  • @simonsvipnews
    #followfriday - Looking to #shareyourdata? The goal of @SanfordCoRDS #CoRDS is to create a central resource for rare diseases

  • @sfbj
    ICYMI, Q&A with new @SanfordHealth Research president @DrDavidPearce: http://t.co/Ts2i2PsMQG http://t.co/QBr874G2RV