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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @Duncan_Original
    @OSohtahara @SanfordCoRDS Pleased to know Aaron and his family. Dan you are blessed! #Omaha

  • @OSohtahara
    Joined @SanfordCoRDS today for the #RareDiseaseDay2015 symposium! Another great year! Thank you!! http://t.co/97Y5UQpU43

  • @nicoleboice
    RT @SanfordCoRDS: Don't forget to check out the vendor tables! #SanfordRDD #WRDD2015 #CareAboutRare http://t.co/jA4qU6KEhc

  • @DrMLBooze
    RT @vitiellp: Final #RareDiseaseDay2015 speaker Dr. Kasturi Haldar discusses improving BBB penetration of drugs for lysosomal disorders @Sa…

  • @vitiellp
    Final #RareDiseaseDay2015 speaker Dr. Kasturi Haldar discusses improving BBB penetration of drugs for lysosomal disorders @SanfordCoRDS

  • @SanfordCoRDS
    Our final speaker, Dr. Haldar @NotreDame discusses the importance of #research in #RareDisease #SanfordRDD #CareAboutRare #WRDD2015

  • @Rose_of_Sharon8
    RT @KFS_Freedom: Dr Giampietro! #KlippelFeilSyndrome Genetic Environmental Contributions 4 Congenital Vertebral Malformations @SanfordCoRD…

  • @cbarce731
    RT @KFS_Freedom: Dr Giampietro! #KlippelFeilSyndrome Genetic Environmental Contributions 4 Congenital Vertebral Malformations @SanfordCoRD…

  • @SanfordCoRDS
    RT @vitiellp: Dr. Rosanna Beraldi from @DrDavidPearce lab speaking about an innovative AT pig model #RareDiseaseDay2015 @SanfordCoRDS @Sanf…

  • @DrMLBooze
    RT @vitiellp: Dr. Rosanna Beraldi from @DrDavidPearce lab speaking about an innovative AT pig model #RareDiseaseDay2015 @SanfordCoRDS @Sanf…

  • @vitiellp
    Dr. Rosanna Beraldi from @DrDavidPearce lab speaking about an innovative AT pig model #RareDiseaseDay2015 @SanfordCoRDS @SanfordHealth

  • @DrMLBooze
    The next talk is by Dr. Ronanna Beraldi who will discuss a pig model of Ataxia Telangienctasia. #RareDiseaseDay2015 @SanfordCoRDS

  • @SanfordCoRDS
    Another great talk, "Unlocking the Brain ..." by Brenda Berry, CGC! @Harvard #walshlab #WRDD2015 #SanfordRDD #CareAboutRare

  • @DrMLBooze
    RT @SanfordCoRDS: Don't forget to check out the vendor tables! #SanfordRDD #WRDD2015 #CareAboutRare http://t.co/jA4qU6KEhc

  • @SanfordCoRDS
    Don't forget to check out the vendor tables! #SanfordRDD #WRDD2015 #CareAboutRare http://t.co/jA4qU6KEhc