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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @jess_zeh
    RT @KFS_Freedom: Klippel-Feil Syndrome Awareness Day Aug 6th! Join here: http://t.co/NUK0pMnNS6 #KFStroll @SanfordCoRDS @RareDiseases http:…

  • @Rose_of_Sharon8
    RT @KFS_Freedom: Klippel-Feil Syndrome Awareness Day Aug 6th! Join here: http://t.co/NUK0pMnNS6 #KFStroll @SanfordCoRDS @RareDiseases http:…

  • @theonlybernster
    RT @KFS_Freedom: Klippel-Feil Syndrome Awareness Day Aug 6th! Join here: http://t.co/NUK0pMnNS6 #KFStroll @SanfordCoRDS @RareDiseases http:…

  • @BrokenGirlBlog
    RT @KFS_Freedom: Klippel-Feil Syndrome Awareness Day Aug 6th! Join here: http://t.co/NUK0pMnNS6 #KFStroll @SanfordCoRDS @RareDiseases http:…

  • @KFS_Freedom
    Klippel-Feil Syndrome Awareness Day Aug 6th! Join here: http://t.co/NUK0pMnNS6 #KFStroll @SanfordCoRDS @RareDiseases http://t.co/3uqa9KXMNP

  • @Austin_Letcher
    Sometimes inspiration comes from the darkest stories ... https://t.co/0FCsBgbeEQ

  • @SanfordCoRDS
    The struggle and best case scenario for those coping with a #raredisease. Thanks for sharing @RareDiseases http://t.co/ijGFlr3ASD

  • @DrDavidPearce
    Potential treatment for LRBA-deficiency, a rare #autoimmune disorder http://t.co/mi8LcnyJu0 #rarediseases

  • @DrDavidPearce
    Flightless Kiwi bird genome sequenced http://t.co/wGuKe70E1l #GeekyScience

  • @DrDavidPearce
    An eye drop that can dissolve cataracts? http://t.co/7jgX0dZrSZ

  • @DrDavidPearce
    Firefly protein luciferase used to image/detect tumors http://t.co/NvAXc3jfH8 #Cancer #GeekyScience

  • @SoftlySmiling
    RT @11pdeletion: A patient registry is only as strong as the data in it! #wwsd2015 register at http://t.co/UJaT6Uy2QE today! #raredisease…

  • @11pdeletion
    A patient registry is only as strong as the data in it! #wwsd2015 register at http://t.co/UJaT6Uy2QE today! #raredisease @SanfordCoRDS

  • @11pdeletion
    Welcoming Austin from @SanfordCoRDS to #wwsd2015

  • @GuyLeachCRPS
    @SanfordCoRDS Checkout Noah & Run For Rare Documentary(2016) by @LmnsPictures #Run4Rare RT https://t.co/AKWhPUJmH2 http://t.co/uRF9wHshzk