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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @SanfordCoRDS
    Passed by @HouseCommerce last Thursday, this #legislation will help #raredisease patients http://t.co/Bw77lwAFRV

  • @DrDavidPearce
    #Gene targeting to convert female Mosquitos to males http://t.co/C3Lc99QYLT to control spread of this species #GeekyScience

  • @DrDavidPearce
    How #neurons and blood vessels come together http://t.co/6hHhECn8VR providing clearer picture for study of some #rarediseases

  • @DrDavidPearce
    #personalizedmedicine A mutation that affects #cholesterol levels linked to #HeartDisease http://t.co/21SHE4rrPG

  • @SuzieSiegel
    @SanfordCoRDS No, thanks. The head of that group attacked me because I questioned statements used to get participation.

  • @SanfordCoRDS
    Simple #gadget made an impact on the life of someone with a #raredisease. @GlobalGenes @RareGenomics @RanomicsInc http://t.co/aj0gFhIjvc

  • @DrDavidPearce
    FDA-approved cancer drugs for developmental #brain disorders such as #FragileX & #downsyndrome? http://t.co/Q5lSrsSeo1 & brain #rarediseases

  • @SeqComplete
    #RareDiseaseDay is out! http://t.co/mXnOh2AVz2 Stories via @SoftlySmiling @SanfordCoRDS @nancynetherland

  • @SanfordCoRDS
    The 2015 NAF Membership Drive Starts Now! ... Your #Team, One #Dream, A #Cure #CareAboutRare https://t.co/nK153TtINQ… http://t.co/VHpkeKEHnB

  • @DrDavidPearce
    We use #yeast to make alcohol #brewing #fermentation Now can be used to make drugs like #morphine http://t.co/QpeDnqAnsN #GeekyScience

  • @DrDavidPearce
    #Bioethics of human gene editing #CRISPR http://t.co/BDlZ1K6mj6

  • @DrDavidPearce
    1st Sanford Stem Cell Consortium/#Sanford Research symposium http://t.co/pO6VqRxu5A