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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @SanfordCoRDS
    We have almost finished your questionnaire builds in #BayaTree! @NAF_Ataxia @ATCure @KawasakiDisease @4pSupportGroup #CareAboutRare

  • @geneticinsidER
    RT @SeqComplete: #RareDiseaseDay is out! http://t.co/cGeIhK2yUe Stories via @SanfordCoRDS @theRSAgroup @geneticinsidER

  • @SeqComplete
    #RareDiseaseDay is out! http://t.co/cGeIhK2yUe Stories via @SanfordCoRDS @theRSAgroup @geneticinsidER

  • @SoftBonesHPP
    #LipSyncBattleforHPP Watch Tomorrow #softboneshpp https://t.co/vnycPN3vbb #RareDisease @SanfordCoRDS @SanfordBurnham @RareDiseases

  • @SanfordCoRDS
    What a great way to #careaboutrare @11pdeletion @RareDiseases http://t.co/Q6mgpXGIKF

  • @GoEarthZebraGo
    @DrDavidPearce See Table #1. Does it say 18% kids in 2007 study were ASD? #Autism #IamTheHerd #vaccinations #VacsWork

  • @DrDavidPearce
    Specialized pump can deliver drugs to #brain for neurological disease, #epilepsy http://t.co/nW7hRx4YEq #rarediseases

  • @DrDavidPearce
    Large study confirms no link between MMR vaccine and #Autism http://t.co/7mDoDoJueP

  • @SanfordCoRDS
    Thought about #crowdfunding as an alternative resource? #CareAboutRare #WODC @Orphanet @CheckOrphan @giverare http://t.co/UVhyIL3T1v