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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @amordamom
    RT @Rose_of_Sharon8: Registration for these Rare Disease Day events is now! Involvement is key! Feb 29th https://t.co/GL58RRNNqf @RareAdv…

  • @RareAdvocates
    RT @Rose_of_Sharon8: Registration for these Rare Disease Day events is now! Involvement is key! Feb 29th https://t.co/GL58RRNNqf @RareAdv…

  • @KFS_Freedom
    Register for Rare Disease Day events now! #RareDiseaseDay #DefyRARE https://t.co/weudcH4Feu @SanfordCoRDS @RareAdvocates @TheMightySite

  • @KFS_Freedom
    Register for Rare Disease Day events now! #WRDD2016 #DefyRARE https://t.co/weudcH4Feu @rarediseaseday @SanfordCoRDS @RareAdvocates

  • @Rose_of_Sharon8
    Registration for these Rare Disease Day events is now! Involvement is key! Feb 29th https://t.co/GL58RRNNqf @RareAdvocates @SanfordCoRDS

  • @SoftlySmiling
    RT @CuresWReach: Learn more about CoRDS, connecting researchers and patients globally. https://t.co/QgVOHY22WU @SanfordCords #raredisease…

  • @RarePOV
    RT @KFS_Freedom: 10 ways 2B involved https://t.co/DDAfQoOh7y Rare Disease Day Feb 29th @GlobalGenes #WRDD2016 @RarePOV @SanfordCoRDS https…

  • @MelLovesJesus
    RT @KFS_Freedom: 10 ways 2B involved https://t.co/DDAfQoOh7y Rare Disease Day Feb 29th @GlobalGenes #WRDD2016 @RarePOV @SanfordCoRDS https…

  • @alanROYGBIV
    RT @CuresWReach: Learn more about CoRDS, connecting researchers and patients globally. https://t.co/QgVOHY22WU @SanfordCords #raredisease…

  • @CuresWReach
    Learn more about CoRDS, connecting researchers and patients globally. https://t.co/QgVOHY22WU @SanfordCords #raredisease #patientregistry

  • @bcmhouston
    RT @RareGenomics: Dr. Carvalho-Fonesca @bcmhouston #HumanGenomic #Disorders @SanfordHealth's 6th #RareDisease Symp. @SanfordCoRDS https://t…

  • @laumari2014
    RT @RareGenomics: Dr. Carvalho-Fonesca @bcmhouston #HumanGenomic #Disorders @SanfordHealth's 6th #RareDisease Symp. @SanfordCoRDS https://t…

  • @RareGenomics
    Dr. Carvalho-Fonesca @bcmhouston #HumanGenomic #Disorders @SanfordHealth's 6th #RareDisease Symp. @SanfordCoRDS https://t.co/h0Z00hG2XO

  • @harmonize4hope
    RT @KFS_Freedom: 10 ways 2B involved https://t.co/DDAfQoOh7y Rare Disease Day Feb 29th @GlobalGenes #WRDD2016 @RarePOV @SanfordCoRDS https…

  • @Rose_of_Sharon8
    RT @KFS_Freedom: 10 ways 2B involved https://t.co/DDAfQoOh7y Rare Disease Day Feb 29th @GlobalGenes #WRDD2016 @RarePOV @SanfordCoRDS https…