Here at Sanford Research, we are committed to finding cures and advancing therapies into rare diseases. To further this mission, we established the Coordination of Rare Diseases at Sanford (CoRDS) – a national rare disease registry designed to accelerate research into these rare conditions.

CoRDS collects and stores basic contact and clinical information on individuals of any age who have been diagnosed with a rare disease (undiagnosed individuals are also eligible for enrollment).

Research is an important way to improve the understanding of rare diseases which may help develop effective treatments. Research into rare diseases is often limited by lack of information and the relatively small number of participants eligible for clinical trials or research studies.

Establishing a central registry of individuals with confirmed diagnoses of any rare diseases is an innovative way to accelerate rare disease research. Researchers nationwide with the appropriate approval can have access to de-identified clinical information from the CoRDS registry that may be helpful to their research.

Individuals enrolled in CoRDS will be informed of clinical trials and research studies for which they may be eligible.

To collaborate efforts with rare disease patient advocacy organizations, healthcare providers, researchers, and individuals to create a central resource that connects scientists conducting research studies with individuals interested in participating in the clinical trial or research study.

If you are an individual affected by a rare disease, a family member, or a rare disease organization representative, please review the CoRDS Brochure and see our FAQ page to learn how you can join the CoRDS initiative. 

Have Questions? Please Contact:

Director, Coordination of Rare Diseases at Sanford
Sanford Research
2301 E 60th Street North
Sioux Falls, SD 57104