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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @DrDavidPearce
    Targeting nonsense-mediated decay of #RNA to treat #rarediseases https://t.co/l56QFOmvU8 #Neuroscience

  • @DrDavidPearce
    #Biochemistry is what allows #Bears to hibernate for 5-7 months https://t.co/Gek9pFgInp #GeekyScience

  • @DrDavidPearce
    Key to what makes #BreastCancer spread? https://t.co/mHJd57aCnK

  • @DrDavidPearce
    Application or #genomics to identify optimal #cancer treatment https://t.co/XUSPpgcedO

  • @Cornervizion
    RT @Rose_of_Sharon8: 4000 Reads 1000 Shares! Proud 2 help w Rare Disease Day Activities Resource - Retweet! @GlobalGenes @SanfordCoRDS http…

  • @KFS_Freedom
    RT @Rose_of_Sharon8: 4000 Reads 1000 Shares! Proud 2 help w Rare Disease Day Activities Resource - Retweet! @GlobalGenes @SanfordCoRDS http…

  • @Medical_Oddity
    RT @Rose_of_Sharon8: 4000 Reads 1000 Shares! Proud 2 help w Rare Disease Day Activities Resource - Retweet! @GlobalGenes @SanfordCoRDS http…

  • @GlobalGenes
    RT @Rose_of_Sharon8: 4000 Reads 1000 Shares! Proud 2 help w Rare Disease Day Activities Resource - Retweet! @GlobalGenes @SanfordCoRDS http…

  • @DaveSThompson
    RT @Rose_of_Sharon8: 4000 Reads 1000 Shares! Proud 2 help w Rare Disease Day Activities Resource - Retweet! @GlobalGenes @SanfordCoRDS http…

  • @MD_Briggs
    RT @Rose_of_Sharon8: 4000 Reads 1000 Shares! Proud 2 help w Rare Disease Day Activities Resource - Retweet! @GlobalGenes @SanfordCoRDS http…

  • @Rose_of_Sharon8
    4000 Reads 1000 Shares! Proud 2 help w Rare Disease Day Activities Resource - Retweet! @GlobalGenes @SanfordCoRDS https://t.co/sJA6eJDGsi

  • @barefootbuzz
    1 in 10k has Cornelia deLange Syndrome. #dayoffacts #cdls https://t.co/ZBGZ2M3Mtc

  • @SanfordCoRDS
    RT @findacure_fdn: We need 100 people to sign up to our #RareDiseaseDay #Thunderclap for it to be released! Please help us today https://t.…

  • @SanfordCoRDS
    Today is the last day to register for our Annual #RareDisease Symposium next Friday! Agenda below, register here:… https://t.co/MGvPOSbLAB

  • @RareDiseaseAdv
    RT @SanfordCoRDS: UPDATED Agenda below - Registration is open for our Annual #RareDisease Symposium on Friday 2/24. Register here: https://…