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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @MYKDZRULE
    @SanfordCoRDS @scleroderma @Independent_ie ❤

  • @DJobling
    RT @SanfordCoRDS: CoRDS T-shirt Contest! Please retweet! #RareDisease #CuresNow Send your image/idea by 9/30 for chance to win! https://t.…

  • @KFS_Freedom
    RT @SanfordCoRDS: CoRDS T-shirt Contest! Please retweet! #RareDisease #CuresNow Send your image/idea by 9/30 for chance to win! https://t.…

  • @JohnMege2033
    RT @SanfordCoRDS: CoRDS T-shirt Contest! Please retweet! #RareDisease #CuresNow Send your image/idea by 9/30 for chance to win! https://t.…

  • @SanfordCoRDS
    CoRDS is proud of @Rose_of_Sharon8 for doing her part for #CureNow! #RareDisease https://t.co/vf0Zjb5ljy

  • @Wurstpeller
    RT @SanfordCoRDS: CoRDS T-shirt Contest! Please retweet! #RareDisease #CuresNow Send your image/idea by 9/30 for chance to win! https://t.…

  • @SanfordCoRDS
    CoRDS T-shirt Contest! Please retweet! #RareDisease #CuresNow Send your image/idea by 9/30 for chance to win! https://t.co/OJXsmtodgC

  • @Rose_of_Sharon8
    Rare Disease #CuresNow picked up by @ECcures @HouseCommerce Check it out! @SanfordCoRDS @GlobalGenes @RareAdvocates https://t.co/Ifki6XKfnZ

  • @SanfordCoRDS
    RT @RareGenomics: Focus: Making Medicine more Precise, Accessible https://t.co/rNCTUcW3QP

  • @pwn4pwn
    #FollowFriday @SanfordCoRDS @PostcodeLoterij for being top influencers in my community this week :) (insight by https://t.co/4XhHPGrV1J)

  • @SanfordCoRDS
    #DiffusePontineGiloma is a #raredisease only affecting 300 people in the U.S. #DIPG @DIPGawarness @DIPGCollab https://t.co/c2TdRBmZT1

  • @DrDavidPearce
    @andy1047 glad to hear! Thanks for sharing.

  • @SanfordCoRDS
    .@OMandM's Austin Carlile on coping with his #raredisease through music #marfansyndrome @MarfanFdn @MarfanTrust https://t.co/kMrN0NBt7P

  • @SanfordCoRDS
    #Identicaltwins born with rare #genetic disease #RareDisease #NeuroFibromatosis @nfnetwork @NFibromatosis https://t.co/KdhMCuZVuR

  • @SanfordCoRDS
    "Doctors lowered teen's body temp to 33 degrees, induced a #coma ..." #raredisease #miltefosine brain-eating #amoeba https://t.co/wXtOi6b7VE