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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @itsanidealworld
    RT @KFS_Freedom: @KFS_Freedom has partnered with @SanfordCoRDS Rare Disease Registry Enroll Today: https://t.co/HNF7jtKorR … #news #resear…

  • @Rose_of_Sharon8
    @KFS_Freedom has partnered with @SanfordCoRDS Rare Disease Registry Enroll: https://t.co/t8Xjmpbon5 … #news #research #genetics #FF #hcsm

  • @KFS_Freedom
    @KFS_Freedom has partnered with @SanfordCoRDS Rare Disease Registry Enroll Today: https://t.co/HNF7jtKorR … #news #research #hcsm #ff

  • @SanfordCoRDS
    RT @CBSHealth: A drug being developed for heart patients may show promise as an #Ebola treatment. http://t.co/1Hb0vTKEkV http://t.co/uLsxRr…

  • @Rose_of_Sharon8
    RT @KFS_Freedom: @KFS_Freedom has partnered with @SanfordCoRDS Rare Disease Registry Enroll: https://t.co/V0p46AgKZF #news #research http:…

  • @KFS_Freedom
    @KFS_Freedom has partnered with @SanfordCoRDS Rare Disease Registry Enroll: https://t.co/V0p46AgKZF #news #research http://t.co/NU6rLY1Rd7

  • @alanROYGBIV
    Nadolig Llawen / Happy Christmas to Liz @SanfordCoRDS catch up in 2015

  • @DrDavidPearce
    Protein that triggers inflammatory reaction a common side effect to many drugs reported http://t.co/RC8XmWxrqb

  • @DrDavidPearce
    Pig model for #Arrhythmias developed http://t.co/b4t3FGJhNp

  • @SanfordCoRDS
    It's confirmed ... Dr. Viskochil will join us for RDD! http://t.co/GsNydyKx5G Stay tuned for more announcements! @NFibromatosis

  • @SanfordCoRDS
    RT @RavensCommunity: @Ravens RB @JForsett and teammates met with patients at the Johns Hopkins Children's Center this afternoon. http://t.c…

  • @DrDavidPearce
    #3dprinting of a meniscus for the knee http://t.co/pDWL4AmipW Wow! #personalizedmedicine

  • @DrDavidPearce
    Two #penguin genomes sequenced http://t.co/Xg2lrf1X7n helping understand genetic diversity #GeekyScience

  • @DrDavidPearce
    RT @KELOHealthBeat: The 'No Vacation Nation': Jill Weimer spends a lot of time in this lab. "I always wish there were more hours i... http:…