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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form so CoRDS personnel can send you your login information for our secure web portal or mail you the enrollment forms.

 
 

Complete your informed consent and questionnaire to be fully enrolled in the CoRDS Registry. You will be asked to update this information annually.

 

Wait to be contacted by CoRDS personnel on behalf of researchers who would like for you to participate in their study!

Get Registered

Twitter Updates on Sanford CoRDS
  • @SanfordCoRDS
    RT @TrueNorth_PS: Check out @TrueNorth_PS Part 2 podcast with @SanfordCoRDS https://t.co/5X7k48ElGv #RareDisease #precisionmedicine #21stce…

  • @SoftlySmiling
    RT @TrueNorth_PS: Check out @TrueNorth_PS Part 2 podcast with @SanfordCoRDS https://t.co/5X7k48ElGv #RareDisease #precisionmedicine #21stce…

  • @SanfordCoRDS
    RT @Primary_Immune1: Human #RareDisease Research Advanced By Man's Best Friend https://t.co/OPZJz8EQq5 #SNRTG #BigData #genomics #science h…

  • @TrueNorth_PS
    Check out @TrueNorth_PS Part 2 podcast with @SanfordCoRDS https://t.co/5X7k48ElGv #RareDisease #precisionmedicine #21stcenturycures

  • @SanfordCoRDS
    RT @LifesaPolyp: Five Weird Things About Being Pregnant With a #RareDisease https://t.co/mngWtrQxYi via @asouthernceliac #chronicillness #h…

  • @SanfordCoRDS
    RT @RareDR: The FDA to Decide on 2 Orphan Drugs This Week - Eteplirsen and Obeticholic Acid https://t.co/MacYte0UhA $SRPT $ICPT https://t.c…

  • @SanfordCoRDS
    Inspiring flashmob hidden in #raredisease day symposium https://t.co/YrY3kE4Q4h

  • @SanfordCoRDS
    Thx for sharing @Primary_Immune1 #research at #sanfordresearch @curebatten @RebeccaJarvis @RobinRoberts @nationwidekids @DrRichardBesser

  • @SanfordCoRDS
    RT @EricTopol: In another #RareDisease—of telomeres—Rx so effective small study stopped https://t.co/e9buu9zxsi + good #dataviz https://t.c…

  • @matsudak5
    @SanfordCoRDS @MakeAWish @BarrowNeuro #RareDiseases A novel therapeutic strategy for #mycoplasma infect dis https://t.co/aOiPmIzmjh

  • @Gomecello
    RT @MPSpapas: The latest MPS papas! https://t.co/cdczijL4Xd Thanks to @HerMagCan @AxcisJobs @SanfordCoRDS

  • @DrDavidPearce
    Understanding the #nucleolus https://t.co/xjcUPD9Xxl in cellular function. Needs more studies in #rarediseases & #neuroscience

  • @DrDavidPearce
    The #bacteria in your gut runs in the family https://t.co/CMi0KIKulZ #Microbiome

  • @DrDavidPearce
    Drug cocktail shows promise for triple negative #breastcancer https://t.co/26dydqJgh0

  • @DrDavidPearce
    RT @WHO: World #HealthStatistics 2016: Monitoring #HealthData for the Sustainable Development Goals https://t.co/UdonMswSyV https://t.co/CX…