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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @SoftlySmiling
    RT @SanfordCoRDS: Registration is open for our Annual #RareDisease Symposium in Sioux Falls, SD on 2/24. Agenda below, register here: https…

  • @SanfordPROMISE
    @alex_palecek @SanfordCoRDS Alex - glad that you submitted an application! Please email SanfordOutreach@sanfordheal… https://t.co/JUnpfhyK8Q

  • @alex_palecek
    @SanfordCoRDS I have submitted an application for the PROMISE Scholars. Who do I contact to see if all materials have been received?

  • @SanfordCoRDS
    Registration is open for our Annual #RareDisease Symposium in Sioux Falls, SD on 2/24. Agenda below, register here:… https://t.co/ULPQeXO23C

  • @SanfordCoRDS
    Register for the First Annual Great Plains #RareDisease Summit #GPRDS16 on Sat, Feb 25th at #SanfordResearch https://t.co/tSyTa9n7s8

  • @DrDavidPearce
    Full #Genome #DNA sequence of Coffea arabica which is the plant used for 70% of #Coffee completed https://t.co/lgVYSYtD4Q #GeekyScience

  • @DrDavidPearce
    Sharing #bigdata to stop the spread of #InfectiousDisease https://t.co/m3HymWYNuy

  • @DrDavidPearce
    Advance in catching and curing all #prostatecancer https://t.co/xSyd1uyt4y

  • @DrDavidPearce
    RT @NatureMedicine: "Designer probiotics" or "Probiotics 2.0" are taking center stage. Read more on these drugs in our newest feature: http…

  • @itsmepanda1
    RT @itsmepanda1: @SanfordCoRDS @TheKDF @NCBI Omg. It's from #rotavirus vaccine!

  • @LButlerRocks
    #gut #bacteria #diet #lifestyle https://t.co/dhW9uckMYY

  • @RareAdvocates
    RT @hope4hivep2: @SanfordCoRDS @RareDayUS we're going with @RareAdvocates to rare disease week on capital hill!

  • @Folk_Medicine
    @SanfordCoRDS #spinalmuscularatrophy and #musculardystrophy is treated in our center. Check out: story of recovering https://t.co/4nBp9c3r1q

  • @SanfordCoRDS
    Calling all #RareDisease patient advocates, researchers and community members. Here's an opportunity to recognize t… https://t.co/SlobfuZQFf

  • @PBCers
    @pbcerscarol will be representing us there. https://t.co/pwH99AFctQ