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Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.
Join CoRDS. Help accelerate research.
Any individual with a rare, uncommon, or unknown disorder is invited to join the CoRDS Registry and help accelerate research into rare conditions.

 

The CoRDS Program Continues to Grow

Welcome to the Coordination of Rare Diseases at Sanford (CoRDS)!

Based at Sanford Research, a not-for-profit research institution, CoRDS is a centralized international patient registry for all rare diseases. The goal of the CoRDS registry is to connect as many patients and researchers as possible to help advance treatments and cures for rare diseases. The CoRDS registry is free for patients to enroll and for researchers to access. We work with patient advocacy groups, individuals, and researchers to coordinate the advancement of research into the 7,000 rare diseases.

 

 

Our Solution

How does enrollment in the CoRDS Registry work?

Complete your screening form and receive login information.

 

 
 

Review informed consent and complete questionnaire to become fully enrolled. You will be asked to update this information annually.

 

Anticipate being contacted for potential research and clinical trial opportunities.

 

 

Get Registered

Twitter Updates on Sanford CoRDS
  • @danblain
    RT @ataxiaandme: Yes, the patient is the expert in their own condition cc @SanfordCoRDS @EveryLifeOrg @premierresearch https://t.co/x2K2…

  • @americanmedchem
    @SanfordCoRDS TY for tweet support about #Meds4Kids #drugdiscovery #collaboration #research #medicine #children act… https://t.co/ifLxfhWwXJ

  • @EveryLifeOrg
    RT @ataxiaandme: Yes, the patient is the expert in their own condition cc @SanfordCoRDS @EveryLifeOrg @premierresearch https://t.co/x2K2…

  • @SarestBearest
    Great Webinar today! ❤️👏🏻☺️ https://t.co/nHGdms7AZ8

  • @SoftlySmiling
    RT @ataxiaandme: A huge Diolch / thank you for including me @EveryLifeOrg @premierresearch @SanfordCoRDS #raredisease webinar

  • @SoftlySmiling
    RT @ataxiaandme: Austin @SanfordCoRDS on screen via webinar cc @premierresearch @EveryLifeOrg #raredisease https://t.co/BRiMuauNFB

  • @SoftlySmiling
    RT @ataxiaandme: My Fourth #raredisease Weimar this afternoon Via @EveryLifeOrg @premierresearch @SanfordCoRDS

  • @SoftlySmiling
    RT @ataxiaandme: Joining @EveryLifeOrg webinar to hear my good friends @julietmpro @premierresearch Austin @SanfordCoRDS #raredisease #…

  • @ataxiaandme
    A huge Diolch / thank you for including me @EveryLifeOrg @premierresearch @SanfordCoRDS #raredisease webinar

  • @ataxiaandme
    Look it's @julietmpro @premierresearch 😊😊 cc @EveryLifeOrg @SanfordCoRDS #raredisease #clinicaltrials https://t.co/jmfB8xRplF

  • @premierresearch
    RT @ataxiaandme: Yes, the patient is the expert in their own condition cc @SanfordCoRDS @EveryLifeOrg @premierresearch https://t.co/x2K2…

  • @ataxiaandme
    Yes, the patient is the expert in their own condition cc @SanfordCoRDS @EveryLifeOrg @premierresearch https://t.co/x2K2A72Ktj

  • @ataxiaandme
    Austin @SanfordCoRDS on screen via webinar cc @premierresearch @EveryLifeOrg #raredisease https://t.co/BRiMuauNFB

  • @premierresearch
    @ataxiaandme @EveryLifeOrg @SanfordCoRDS #WebinarWednesdays FTW! :-)

  • @ataxiaandme
    My Fourth #raredisease Weimar this afternoon Via @EveryLifeOrg @premierresearch @SanfordCoRDS