Schedule of Topics

The Great Plains Rare Disease Summit

Schedule of Topics

8:45 a.m.
Breakfast and Registration

9-10 a.m.
HOSA Poster Presentation

10-10:10 a.m.
Welcome Address
David Pearce, PhD
Executive Vice President of Innovation and Research, Sanford Health

10:10-10:40 a.m.
Mike Porath
CEO and Founder, The Mighty

10:40-11:10 a.m.
Caregiver Burnout and Fatigue
Aimee Deliramich, PhD

Licensed Clinical Psychologist, LifeScape

11:10-11:30 a.m.

11:30 a.m. - 12:15 p.m.
Patient Resource Panel
Brenda Bernard, MS
Educational Leadership and Supervisor of Elementary Special Education and District Autism Programs, Sioux Falls School District

Nathan Anderson, MA, LSW
Medical Social Worker, Sanford Children’s Specialty Clinics

Lisa Sanderson
Associate Director and Family to Family Coordinator, South Dakota Parent Connection

12:15-1 p.m.

1-1:30 p.m.
Talking to Researchers
David Pearce, PhD
Scientist and Executive Vice President of Innovation and Research, Sanford Health 

Jill Weimer, PhD
Scientist and Senior Director of Therapeutic Development, Sanford Research 

Laura Davis-Keppen, MD
Medical Geneticist, Sanford Children’s Hospital; Professor of Pediatrics, University of South Dakota Sanford School of Medicine

3:30-3:10 p.m.
Closing Remarks